Ehlers danlos is another that they constantly miss. I would suggest with your symptoms to be screened for it . It’s also know as hypermobility syndrome. Just a thought I have it and an undiagnosed autoimmune.

Ehlers danlos is another that they constantly miss. I would suggest with your symptoms to be screened for it . It’s also know as hypermobility syndrome. Just a thought I have it and an undiagnosed autoimmune.

Difficulty, treatment and effect of SLE and/or MTSD., are so difficult to diagnose. I am a 69 year old retired RN w”diagnosed with Fibromyalgia in 2002. I recently had bloodwork with a resulting positive ANA 1:40 – speckled (SLE, connective tissue disorder , skin issues and one other I do not have in front of me). My history is bizarre – yet, follows all related info in the MTSD diagram. Difficult surgeries, excessive menses, bicornated uterus, keloid tissue, inability to heal well – infections, balance and falling issues. I have fractured my left ankle and recently my left femur. Major hair loss, unusal consistent taste in mouth, all caps, filling & bridge have fell out teeth. Deep muscle/bone pain and spasms. Extreme fatigue and EBS. Diagnosed with P.A.T. at age 27 years – all testing with cardiac teams have been within the normal limits. With age increase in depression and anxiety and severe insomnia. Only able to sleep when exhausted or short naps – related to the pain. My knee’s are huge and have irregular pain over entire body. I have been taking Norco 10/325 – 3 per day for 17 years and Xanax 0.5 mg twice per day for 6-7 years. I also have been on Prosac for 1 year. I been on Beta-blockers forever – currently, Atenolol 50mg twice per day. I occasionally will have mouth ulcers, frequent dry mouth, ringing in ear’s and visual changes occasionally. I dislocate easily. I am homebound, use of wheelchair – inability to walk since last fracture. I am seen by a Pain Management team, Psych MD, Primary Care MD, Neurologist (Director – Methodist in the Woodlands, Tx) and actually was told by Dr. Richard Rubin *(assoc of Baylor School of Medicine) – that I presented with s/s of Lupus – but labs did not document the same. Anyway, any info, suggestions etc. is appreciated. Currently, researching. Thank You – Kay