Comments on: Brain Symptoms, Brain Fog, and Lupus https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/ Health Info on Lupus Symptoms, Treatments & Research Wed, 14 Dec 2022 09:21:42 +0000 hourly 1 https://wordpress.org/?v=6.2.4 By: Veronica https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-250864 Wed, 14 Dec 2022 09:21:42 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-250864 In reply to Susan.

JD, Ditto! Ditto! Ditto!

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By: Anne Cornish https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-250836 Tue, 13 Dec 2022 16:37:38 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-250836 Hi, I have been diagnosed with Lupus since 2002, since 2018 I have been suffering with blurred visual disturbances & later on that year seizures. It was discovered by an mri scan in 2010 that I have a left sided temporal lobe Meningeoma but not told, it last grew in 2017 & part of it has calcified, this no growth coincided with my starting an immune suppressant called Mercaptopurine. I was eventually told about the benign tumour in 2020 & put on Levitiracetam for my seizures which work quite well until I am in a flare, then the seizures start to bleed through, I have had a blood clot in the right temporal lobe also but it wasn’t explained why & just left. my GP & I can see a pattern forming & he believes like I do that they are autoimmune related, but I can’t pin my neurologist down to confirm it and my Rheumatologist doesn’t have any experience of Lupus, my last specialist left during covid & the hospital Trust has not attracted anyone new to the position. I feel totally alone as I know alot of us do.
I m not expecting miracles I just want some confirmation!

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By: GG https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-250828 Tue, 13 Dec 2022 15:53:08 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-250828 In reply to Melissa Clarke.

I was in the same position as you several years ago. I was working in healthcare. I found my brain fog and memory problems were so exacerbated by the stress of physical and mental fatigue from my job that I would forget important things. Toward the end I forgot how to run a biopsy machine is been running for years. I had my manager take me off of biopsies and did other things but eventually I just couldn’t keep going. There also becomes a point when you are no longer able to perform the duties listed in your job description. When that happens you file for disability. If you have a work disability policy you’d file for that and SSDI simultaneously but separately. Work policy pay if you can’t work at the job you had when filing. SSDI pays if you can’t work at any job. SSDI is extremely hard to get and takes years. Best of luck to you.

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By: Karla https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-247717 Sun, 20 Nov 2022 06:36:28 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-247717 I am 61 years old and was diagnosed with lupus at age 15. I have fought many battles including many in which I almost succumbed to death. It is presently in my blood and my kidneys. I have an IQ of over 140 but these past couple of years my memory has started to falter. Note my job as a second’s grade teacher is on the line. I forget Simple daily tasks and now the memory blocks are being being intensified because of anxiety which has led to terrible tremors. I have been searching for answers for a very long time and just today one of my friends found this article. I want to follow up with this but I don’t think my rheumatologist even knows this is a thing. When I went to see him explaining the memory loss and tremors he had no idea what it was and said it probably wasn’t lupus because all of my labs look good.

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By: Karla https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-247718 Sun, 20 Nov 2022 06:36:28 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-247718 I am 61 years old and was diagnosed with lupus at age 15. I have fought many battles including many in which I almost succumbed to death. It is presently in my blood and my kidneys. I have an IQ of over 140 but these past couple of years my memory has started to falter. Note my job as a second’s grade teacher is on the line. I forget Simple daily tasks and now the memory blocks are being being intensified because of anxiety which has led to terrible tremors. I have been searching for answers for a very long time and just today one of my friends found this article. I want to follow up with this but I don’t think my rheumatologist even knows this is a thing. When I went to see him explaining the memory loss and tremors he had no idea what it was and said it probably wasn’t lupus because all of my labs look good.

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By: Bea Griffis https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-161509 Fri, 15 Apr 2022 14:20:49 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-161509 In reply to Tina McFarland.

I was diagnosed with Lupus when I was around 18/19 and it has been an awful journey until now (current age: 37) to be honest. I’ve had endometriosis as well, and had to have a full hysterectomy at the age of 30. Since January of 2021, I’ve been experiencing so many new issues and I’ve documented all of them because at some point you 100% feel crazy or you feel like people around you start to think you’re making it up. Recently, I’ve had headaches, blurred vision, floaters, memory issues (almost feels like pregnancy brain), and movement issues. My Rheumatologist is the absolute best Dr, so I’m blessed by God for that! We are going to see a neurologist for brain swelling. The other bizarre issue I have is that my eyes either water or feel scratchy almost every morning and my veins swell up in my feet and hands so badly that they hurt. Another issue is the “knocking” or wave like spasms in my side (from rib cage to hip) on the left side that no one can explain. The One common thing we see in the blood is that my D-Dimer is 10x or 2x higher than it should be, but no blood clot is found. Which has been extremely frustrating. My white blood cells are below the range and they found WBC in my urine as well on 3/28 when I was in the hospital.

I have sleep apnea and gastritis as well, so that hasn’t helped me in feeling well either!

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By: Brittany https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-161478 Fri, 15 Apr 2022 13:23:01 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-161478 In reply to Bobbi R Telfer.

I was diagnosed with Lupus when I was around 18/19 and it has been an awful journey until now (current age: 37) to be honest. I’ve had endometriosis as well, and had to have a full hysterectomy at the age of 30. Since January of 2021, I’ve been experiencing so many new issues and I’ve documented all of them because at some point you 100% feel crazy or you feel like people around you start to think you’re making it up. Recently, I’ve had headaches, blurred vision, floaters, memory issues (almost feels like pregnancy brain), and movement issues. My Rheumatologist is the absolute best Dr, so I’m blessed by God for that! We are going to see a neurologist for brain swelling. The other bizarre issue I have is that my eyes either water or feel scratchy almost every morning and my veins swell up in my feet and hands so badly that they hurt. Another issue is the “knocking” or wave like spasms in my side (from rib cage to hip) on the left side that no one can explain. The One common thing we see in the blood is that my D-Dimer is 10x or 2x higher than it should be, but no blood clot is found. Which has been extremely frustrating. My white blood cells are below the range and they found WBC in my urine as well on 3/28 when I was in the hospital.

I have sleep apnea and gastritis as well, so that hasn’t helped me in feeling well either!

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By: Brittany https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-161479 Fri, 15 Apr 2022 13:23:01 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-161479 In reply to AMIT DEWAN.

I was diagnosed with Lupus when I was around 18/19 and it has been an awful journey until now (current age: 37) to be honest. I’ve had endometriosis as well, and had to have a full hysterectomy at the age of 30. Since January of 2021, I’ve been experiencing so many new issues and I’ve documented all of them because at some point you 100% feel crazy or you feel like people around you start to think you’re making it up. Recently, I’ve had headaches, blurred vision, floaters, memory issues (almost feels like pregnancy brain), and movement issues. My Rheumatologist is the absolute best Dr, so I’m blessed by God for that! We are going to see a neurologist for brain swelling. The other bizarre issue I have is that my eyes either water or feel scratchy almost every morning and my veins swell up in my feet and hands so badly that they hurt. Another issue is the “knocking” or wave like spasms in my side (from rib cage to hip) on the left side that no one can explain. The One common thing we see in the blood is that my D-Dimer is 10x or 2x higher than it should be, but no blood clot is found. Which has been extremely frustrating. My white blood cells are below the range and they found WBC in my urine as well on 3/28 when I was in the hospital.

I have sleep apnea and gastritis as well, so that hasn’t helped me in feeling well either!

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By: Leanne Odum https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-45290 Tue, 23 Feb 2021 16:00:19 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-45290 In reply to Bobbi R Telfer.

This is almost exactly what I’ve been experiencing for over 5 years now and still haven’t been diagnosed yet! My vision is almost gone, the brain fog is debilitating, my legs and feet swell up and turn purple, my veins in my hands swell up and feel like there going to burst and ai have hard lumps in my jaw, skull, legs and foot that may be tumors. This is horrible! My knees swell and the bones crunch when I walk or bend down, I’ve been going bald for years now, I can’t even wash dishes because the pain in my hands are so bad, and I have 4 children 2 who have severe disabilities and require constant care and support and I’m exhausted ALL THE TIME! I also believe it was brought on by mold exposure years ago when I caught pnemonia 3 times within 2 1/2 months. The house we were in was leaking water every time it rained and that’s when my symptoms went from very mild to severe. 5 years living this way without any answers from my physicians. It’s depressing at the very least. I hope you find answers soon and can start to feel better.

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By: Sandy https://lupuscorner.com/brain-symptoms-brain-fog-and-lupus/#comment-36582 Tue, 17 Nov 2020 05:49:37 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3950#comment-36582 In reply to Brenda.

I continue to have strange things.happen to me .one day it will be my complete hand and.odd rashes…My teeth get so sore and I get bumps that are so sore on my tongue plus the mental fog and extreme tiredness ..my anixuty continues to get worse but I can’t get a dr to give me anything for my nerves…

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