Oral Health, Smiles, & Lupus Symptoms
Good oral health can be the difference between smiling & screaming. But, it's not as easy as proper brushing when you have lupus. The mouth is the beginning of the digestive system. When considering oral health, all aspects of the mouth…
Photosensitivity, UV Light, and Lupus
Having lupus means protecting yourself from dangers. But, photosensitivity presents a unique challenge and is often misunderstood. You've read it before: People with lupus should limit their sun exposure. A study by Vila, L., et. al. published over 20 years…
Hospitalizations for Lupus Symptoms
Hospitalizations can seem hard to avoid when battling lupus, co-morbid conditions, infection, and more. People with lupus often experience many symptoms that seem to come and go. It can be difficult to know when to go to the hospital and when…
Lupus Fatigue & the Seasons: FSS Data
There have been over 942 responses to the Fatigue Severity Scale. Let's analyze the scores to look for seasonal lupus fatigue. In previous posts, we have looked at why we use the FSS to measure lupus fatigue and some initial results…
Hair Loss (Alopecia) – A Symptom of Lupus?
Hair loss, or alopecia, is a symptom of lupus that impacts roughly 50% of people with the disease. Lupus causes inflammation and when it impacts the body's largest organ, the skin, it can result in hair loss. It is most common to…
Lupus Flares: Is There Such a Thing as Normal?
It's normal to fear the unexpected - and what's more unexpected than lupus flares? You follow the standard advice on how to avoid lupus flares by trying to limit stress, getting plenty of rest, and being cautious of UV light.…
Music, Reactions to Stress, & Lupus
The research is in. Stress and lupus do NOT mix. Can listening to your favorite jam help? We all know that stress can makes things worse. A prospective study published in 1994 by Da Costa, D., et. al, found that major life stressors…
SYS: Writing About Lupus with Emojis
They say a picture is worth a thousand words -- Well, how many emojis does it take to describe lupus? It can be hard to explain lupus to friends and family. But, research is beginning to look at the value…
A Mental Health Professional Answers the Top 4 Questions
You're a lupus pro. You know when to call your rheumatologist, dermatologist, or your PCP. But when do you call for mental health support? Making the decision to reach out to a mental health professional, and following through with contacting…
Lupus Can Make It Hard To Sleep. Can Tech Help?
While everyone needs good sleep, for Lupus Warriors it is even more critical, but often elusive. "My mom thinks I'm lazy but I told her most nights I don't even sleep ... I just lay there." Few people understand the feeling…