SYS: Writing About Lupus with Emojis
They say a picture is worth a thousand words -- Well, how many emojis does it take to describe lupus? It can be hard to explain lupus to friends and family. But, research is beginning to look at the value…
A Mental Health Professional Answers the Top 4 Questions
You're a lupus pro. You know when to call your rheumatologist, dermatologist, or your PCP. But when do you call for mental health support? Making the decision to reach out to a mental health professional, and following through with contacting…
Lupus Can Make It Hard To Sleep. Can Tech Help?
While everyone needs good sleep, for Lupus Warriors it is even more critical, but often elusive. "My mom thinks I'm lazy but I told her most nights I don't even sleep ... I just lay there." Few people understand the feeling…
Managing a Lupus Flare – Advice From Experts
Because they are unpredictable, a lupus flare can be frustrating and frightening. The onset of symptoms, ranging from rashes and fatigue to serious joint pain and risk of organ damage, can seem unmanageable. A lupus flare contrast periods of time with…
Lupus Fatigue and the FSS Scale Scores
Tracking your lupus fatigue helps identify factors that may help or exacerbate your symptoms. Are you tracking? In the last two weeks, over 350 people have used Facebook Messenger (to start tracking, just type: FSS) to track their fatigue using the…
Lupus Facts Quiz — The Results
Over 2,700 people took our lupus quiz. See what they knew in our pie (charts)! A month ago, we posted a quiz to see how much people know about lupus. The quiz was made up of 5 questions: 3 multiple…
Fatigue, Decreased Energy, & Lupus
For many people with lupus, extreme fatigue is one of the primary symptoms of the disease. Know what contributes to this symptom and learn strategies for minimizing the onset as early as possible. What contributes to fatigue with lupus? Upwards of 80%…
Marijuana (Cannabis) or CBD Oil for Lupus
Marijuana as a lupus treatment may sound psychedelic -- but research efforts are ramping up! While possession and use of marijuana is still prohibited by federal law which supersedes state law, 44 states have medical marijuana laws that allow for…