Comments on: Cold Weather, Symptom Flares, and Lupus

By: Erica

Erica — Sun, 17 Apr 2022 03:58:30 +0000

I’m so sorry to hear that family aren’t able to comprehend your pain. I hope all of your pain is successfully managed for you so that you don’t go through that anymore or as often. It took awhile, but my family finally understood after a little, I hope this happens for you soon too!!

By: Erica

Erica — Sun, 17 Apr 2022 03:58:30 +0000

By: Dr. Barbara J Kahl

Dr. Barbara J Kahl — Wed, 05 Jan 2022 01:13:45 +0000

I visited OMSI in Oregon with my grandkids. There was an interactive thermal imaging camera to use for determining what roof types create lower CO2, and produce better temperature control given global warming theories. Our hands would get in front of the camera occasionally. My grandsons and husband’s hands were a bright yellow orange to the fingertips. Mine were an orange just to my fingers which were deep purple. My toes are the same. I had no idea that my bad circulation was from lupus. I did know my pain goes through the roof in bad weather. I can predict rain and cold three days before it comes. My fingers burn and tingle just being out in mild winter temps, feet too. It’s difficult to have my family understand.