Comments on: Cutaneous Lupus Erythematosus (CLE)

By: Sara Ann Smith

Sara Ann Smith — Thu, 01 Jun 2023 21:16:05 +0000

In reply to Rachel O'Neill. Head & shoulders shampoo used as body wash has worked the best for me.

By: Sara Ann Smith

Sara Ann Smith — Thu, 01 Jun 2023 21:16:05 +0000

In reply to Rachel O'Neill. Head & shoulders shampoo used as body wash has worked the best for me.

By: Morton Hurt

Morton Hurt — Tue, 26 Apr 2022 04:29:53 +0000

I only joined the club but already appreciate the insight.

By: Rachel O'Neill

Rachel O'Neill — Wed, 02 Dec 2020 16:58:12 +0000

I would like to know what’s the best body wash to use ? as most soaps make the lesions worse. I also swim in the pool

By: Keisha Swisher

Keisha Swisher — Tue, 21 Apr 2020 16:40:30 +0000

In reply to Linda Reichard.

Hello. I found this article very interesting. I was first diagnosed with Chronic Discord Lupus @ 14. My scarring is permanent and on my face (90%of it…), which are on my cheeks, behind my ears, on my arms. I developed Systemic Lupus life, at the age of 36ish( I ignored the symptoms for years before I sought medical attention), I was in denial of my Disease progression). At any rate, back then, the treatment was cordran (msp) tape, and Protaba (24 capsules daily) and applying a skin bleaching solution to the leisons( once the tape pulled the scabs off). My scars are hypo-pigmentation and 36 years later I Still adorn my Warrior Stripes. LOL.
Today, focus is on SLE.. in which I take 400 MG Hydroxychloriquine daily and pain medicines, along with vitamins, etc.

By: Linda Reichard

Linda Reichard — Mon, 17 Jul 2017 02:29:56 +0000

Thank you for addressing this form of Lupus. I was diagnosed a year ago with cutaneous lupus when I developed a bright red horseshoe shaped rash on my chest. A biopsy confirmed the diagnosis. I am currently on hydroxchloroquin and tolerating it very well. I break out in strange rashes on a constant basis on my arms and legs. But seem to not last very long. Thanks for addressing this type of Lupus.