thank You for sharing. beckne

Hello, I understand you have so many worries and are reading all the information on these sites. First, remember there isn’t a lot you can change about your diagnosis, but you ca. change the way the disease affects you. Like you, in the last 5 years, i have not been able to sleep at nigh5z. i am so fortunate to have the best spouse who has put up with me… The scary part for me is missing out. I have made all kinds of adjustments to try to sleep at night. I was diagnosed at the age of 32 after years of symptoms abd the struggle, blood clots, kidney, pad, and strange rashes in my ears… As i have aged wutg my situation. i am now unable to undergo any type of surgical procedure, since i have an extreme case in my spine ( crushing injury years before my sle diagnjsis). I have had secondary infections, i am on oxygen 24/7. due to valley fever – white lung disease… kidney nephritis, cardiac, thyroid disease and chronic clots with a protein c and s dificency. so, you see, it’s all going to be relative to your new life. as a Lupie… cab i tell you? I live an amazingly happy life? I truly am so incredibly happy with my life, success, and support lies within my ability to use my daily “devotions” (gongyo abs Nmrk🙏🏼). which changed my own outlook on how to cope with this disease. For me, in my faith, it isn’t this outside force of we don’t get what we can’t handle in life, because some higher power has a plan for me? No way is that a fact for me, that said, because of my own faith. being a lupie, is a part of me because i have my karma to work through, that negatively is enough to break anyone, i choose to not allow it to break me. even while i am in my own bed night after night, wondering if i’ll ever able to get to a 9-10am appointment. or when my family comes am i really getting out taht day? I have had to stop reading too much online because most people who are online are having symptoms, we don’t come to a forum like this to dig deep into our goid days, or the happiness we all share. So, if tve dr is not an option abs you have lupus, please try to reach 211 on a landline? maybe they can help you, apply for social security disabilty jf your married under your spouse if not go teh ssi route like, today or tonight. the best defense is offense. i can try tk look at this page again if yoh ghee me your state and age i will direct yoh to someone- somehow . i strongly encourage you to find the Sam-e herb abs the luous vitamins, lots of water and a lot dk fresh green foods as ling as your blood clots are rules out and hour not on warfarin. it’s very important to pay attention abs journal – we will try tk be here for you… but for now. I will pray for your ability to cope abs read my typos.. please know we are all with you

Since being diagnosed with lupus it has definitely changed my life in so many ways on so many levels. I have to apologize to my family and hand full of friends all the time simply because getting through most days is a task for me. I’m very lucky bc the ones that are in my circle are very understanding to my situation. I don’t make plans bc often times I can’t keep them. Most of my time is spent in the house, I do however make sure I get up, shower, put some clothes on & make myself feel like something even if I do nothing. It makes me feel good about myself in spite of what I battle on a daily. Self love and self care is very important to hen you have this disease bc it can literally feel like it’s taken everything away from you that only you understand. Loving yourself through this very complex & difficult disease I have found to be very important. I have discovered that there is purpose in pain. God has done amazing things within me bc I have a lot of time to spend with Him & even though I have this horrendous disease that’s a thorn in my side many blessing have occurred.

Since being diagnosed with lupus it has definitely changed my life in so many ways on so many levels. I have to apologize to my family and hand full of friends all the time simply because getting through most days is a task for me. I’m very lucky bc the ones that are in my circle are very understanding to my situation. I don’t make plans bc often times I can’t keep them. Most of my time is spent in the house, I do however make sure I get up, shower, put some clothes on & make myself feel like something even if I do nothing. It makes me feel good about myself in spite of what I battle on a daily. Self love and self care is very important to hen you have this disease bc it can literally feel like it’s taken everything away from you that only you understand. Loving yourself through this very complex & difficult disease I have found to be very important. I have discovered that there is purpose in pain. God has done amazing things within me bc I have a lot of time to spend with Him & even though I have this horrendous disease that’s a thorn in my side many blessing have occurred.

Thank you so much for reading and sharing. 💜

This is me.