Comments on: Why Doctors Misdiagnose Lupus (& What You Can Do!) https://lupuscorner.com/doctors-misdiagnose-lupus/ Health Info on Lupus Symptoms, Treatments & Research Thu, 18 May 2023 01:20:46 +0000 hourly 1 https://wordpress.org/?v=6.2.4 By: Carolina https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-272292 Thu, 18 May 2023 01:20:46 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-272292 3 positive ANAs, 1 positive double stranded DNA, low platelets for over 25 years, myalgia, joint swelling, redness to the point where I could not put weight on that foot. Steroids to calm the swelling and pain. I don’t have full range of motion on my right arm/shoulder. Extreme fatigue, insomnia. Yet the rheumatologist will not call this lupus.

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By: Carolina https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-272293 Thu, 18 May 2023 01:20:46 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-272293 3 positive ANAs, 1 positive double stranded DNA, low platelets for over 25 years, myalgia, joint swelling, redness to the point where I could not put weight on that foot. Steroids to calm the swelling and pain. I don’t have full range of motion on my right arm/shoulder. Extreme fatigue, insomnia. Yet the rheumatologist will not call this lupus.

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By: Kimberly Erb https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-269597 Wed, 26 Apr 2023 15:57:46 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-269597 In reply to Cynthia Manca.

I agree with everything you said. I tested positive for lupus in 2018 . And my mom died from it. I went to a rheumatologist he said it was all in my head. I got no treatment. The symptoms. I have are fatigue, rashes low-grade fevers.. hair loss low vitamin D, low potassium . Joint pain ulcers in my nose in my mouth.. headaches pains in my chest. In my medical records, it said I had Sjogren’s. I been going to doctor to doctor to get help. They say it all in my head. My mom mother died from rheumatoid arthritis. So how do I Moon diseases run in the family. I am sick of feeling like I have the flu.. the doctor said I have the markers for it but I don’t have it. They’re not going on my symptoms are in my family history.. both my grandma and mother did not get treatment for their autoimmune diseases and died. So now I’m gonna be the third generation to die of those diseases and not have treatment myself.. I think this is wrong that this happens to us we should have a right to be hurt when we are sick. I think things need to change in the medical community.. I think God that it hasn’t went into my kidneys yet. Or any other organs. Another thing I don’t like is the brain fog and short term memory loss. For me, the true heroes were my grandma and my mother and everybody else that has had any autoimmune diseases.. Anna on treatment, or fighting to get that diagnosis, for you are truly my heroes. I pray that there is a cure one day, so no one else’s stuff for her die from these dreaded diseases,

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By: Kimberly Erb https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-269598 Wed, 26 Apr 2023 15:57:46 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-269598 In reply to Cynthia Manca.

I agree with everything you said. I tested positive for lupus in 2018 . And my mom died from it. I went to a rheumatologist he said it was all in my head. I got no treatment. The symptoms. I have are fatigue, rashes low-grade fevers.. hair loss low vitamin D, low potassium . Joint pain ulcers in my nose in my mouth.. headaches pains in my chest. In my medical records, it said I had Sjogren’s. I been going to doctor to doctor to get help. They say it all in my head. My mom mother died from rheumatoid arthritis. So how do I Moon diseases run in the family. I am sick of feeling like I have the flu.. the doctor said I have the markers for it but I don’t have it. They’re not going on my symptoms are in my family history.. both my grandma and mother did not get treatment for their autoimmune diseases and died. So now I’m gonna be the third generation to die of those diseases and not have treatment myself.. I think this is wrong that this happens to us we should have a right to be hurt when we are sick. I think things need to change in the medical community.. I think God that it hasn’t went into my kidneys yet. Or any other organs. Another thing I don’t like is the brain fog and short term memory loss. For me, the true heroes were my grandma and my mother and everybody else that has had any autoimmune diseases.. Anna on treatment, or fighting to get that diagnosis, for you are truly my heroes. I pray that there is a cure one day, so no one else’s stuff for her die from these dreaded diseases,

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By: David https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-259734 Wed, 15 Feb 2023 23:56:59 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-259734 OMG I can so relate

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By: alayah https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-149313 Tue, 08 Mar 2022 19:18:21 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-149313 i am new to lupus and have not been diagnosed, only recently have i been exposed to the idea of having it to my doctor in the ER. My grandmother has lupus and my first cousin has an undiagnosed autoimmune disease. My mother was diagnosed withRA but I think it was incorrect, she died of a heart attack at 49. I have been experiencing many lupus symptoms, like the butterfly rash i thought was sunburn. Painful joints to the point of steroidal injections and feeling like i have the flu but no one else in the house contracting my sickness. I am constantly fatigued and can sleep easily 16 hours a day. I am only 24yo, but this battle is far from over. 6 surgeries in 3 years to try to find answers and yet all inconclusive.

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By: James Stuard https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-146773 Mon, 28 Feb 2022 17:27:37 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-146773 my family has lupus in it. I have friends that have lupus and that are nurses. My daughter is not being diagnosed with lupus because she is too young. She has all of the symptoms. She gets the flares the rashes the skin peeling. Tired all of the time. Cries because of pain in joints and from the skin issues. I took to the doctor again today and he said yes it looks like it but we do not like diagnosing it. I have spent of $2000 with insurance and not only am I losing all of my money but my daughter is suffering and crying. Where do you turn to when it is obvious but no one will help?

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By: Suzette Lampman https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-145775 Fri, 25 Feb 2022 07:19:48 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-145775 In reply to BrandiB.

Wish I could get answers to my problems they are just getting worse and I feel like I have several autoimmune disorders including lupus and hands and feet are tingling and becoming numb and I feel like I will be paralyzed if I don’t get a diagnosis soon. I have so many more symptoms but too tired to text them all. I feel like I’m dying literally every single night and day and so tired of Drs and no one listening it’s horrible. We need real physicians who listen and care.

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By: Suzette Lampman https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-145771 Fri, 25 Feb 2022 07:09:54 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-145771 In reply to Amanda Boyle.

I have serious problems and more than likely autoimmune diseases but no one can help me. I’m exhausted trying to find a dr who will listen and do something til they find out what’s wrong with me. I just might have lupus with other one’s as well it just spiraled out of control because no one listened.

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By: Suzette Lampman https://lupuscorner.com/doctors-misdiagnose-lupus/#comment-145772 Fri, 25 Feb 2022 07:09:54 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=3276#comment-145772 In reply to Amanda Boyle.

I have serious problems and more than likely autoimmune diseases but no one can help me. I’m exhausted trying to find a dr who will listen and do something til they find out what’s wrong with me. I just might have lupus with other one’s as well it just spiraled out of control because no one listened.

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