Comments on: Frustrations (and Remaining Optimistic) with Lupus

By: Kelli

Kelli — Tue, 14 Jan 2020 12:46:46 +0000

In reply to Shibu. Truly, I’m in Alaska so I don’t get much fellowship or others who understand and my husband has decided that it’s not worthy of his consideration so I feel good to see other talk about similar experiences. Thank you all and much love, En. You said it very well.

By: Kelli

Kelli — Tue, 14 Jan 2020 12:42:55 +0000

In reply to Christy Smith. So true. The guilt of not being what I was or being able to be a full version of me for them...,.,

By: Georg

Georg — Mon, 09 Dec 2019 21:19:42 +0000

In reply to Janell Eaker. Thank you for reading and participating. We are glad to have you, and everyone else, be a part of this community!

By: brett

brett — Wed, 11 Sep 2019 13:14:38 +0000

In reply to Chris. We are glad to have you! Thanks for sharing and please let me know if there are topics that you would like us to cover -Brett

By: Chris

Chris — Sat, 07 Sep 2019 15:35:06 +0000

I’m really glad I have joined this forum! It is helpful to see how others handle this insidious and often misunderstood disease. Namaste warriors????

By: brett

brett — Fri, 06 Sep 2019 15:44:15 +0000

In reply to daryn dahlia.

Thanks for sharing and being part of the LupusCorner community! I’m glad that it was valuable to hear from other people with lupus. We are working on more of these Q&A Forum articles. You’re absolutely right – there is a huge need for more awareness!
-Brett

By: Mary Taylor

Mary Taylor — Fri, 30 Aug 2019 18:40:09 +0000

Reading these comments help me deal with my feelings about the disease. Not being able to plan anything, even doctor appointments is frustrating for me.

By: daryn dahlia

daryn dahlia — Tue, 20 Aug 2019 15:18:29 +0000

absolutely love reading this! i feel at ease knowing that there are actually others who feel the same as me abt lupus. we need more awareness around the world!! especially in Asia!

By: Roxana

Roxana — Fri, 16 Aug 2019 19:35:15 +0000

Is very important to share impressions with the others when you suffer from something, more over abt lupus. Is not a simple disease. It takes time to learn how to live with it. People don’t understand you most of time because you can look beautiful on outside but inside you feel bad: fatigue, i cannot focus on imp things, lack of sleep, anxiety and depression.
Is not easy at all. Talking with people having the same symptoms, it helps a lot.

By: Mechelle

Mechelle — Wed, 14 Aug 2019 02:41:05 +0000

Wow I have persons who share things with me.