Comments on: Lupus Diagnosis: Connecting the Dots

By: Darlene

Darlene — Fri, 25 Dec 2020 01:07:05 +0000

In reply to Brenda. If you have no symtoms why was your ANA checked? Mine was positive for years from hashimoto's disease. There are many reason and sometimes none. Good luck

By: Valerie

Valerie — Mon, 26 Oct 2020 10:53:19 +0000

In reply to Marypoppins. Yes, my daughter first results were negative and she had the perfect butterfly rash following a sunburn and when we got biopsy done from dermo they diagnosed her. Every blood test after that showed sle.

By: Carol

Carol — Mon, 12 Oct 2020 17:13:26 +0000

I would like feedback on your thoughts about my lab tests. I have hoshimitos’s, as years ago. I have severe fatigue, joint pain in hands that wakes me up at night, somewhat manageable during day. Brain fog, forgetfullness, unable to get a full cleansing breath to name a few.
Tests: ANA- Positive- speckled-1:320
RA- positive
RE Semi quant – 40
SS-A & SS-Ar strong positive- 89
TPO-2007

By: Carol

Carol — Mon, 12 Oct 2020 17:04:37 +0000

Autoimmune test results

By: Susan Duncan

Susan Duncan — Sat, 05 Sep 2020 15:03:01 +0000

In reply to Teresa Mabe.

Hi. I am going thru the same things with Dr’s. I don’t know why they are so arrogant and unhelpful. We are the ones Eugene putting out faith and hope in thier help. I’m thinking I hand lupus but am waiting for a descent Dr to help. I have chronic pancreatitis, EPI and an IPMN. NO ONE CAN HELP ME. I’VE HAD MUSCLE issues. My tendons in my body and muscles are so painful. Everyday same thing some days I cannot get out of bed.. I do not know why Dr’s are like this. Anything I have learned about lupus is on the internet and other people’s stories. It’s so frustrating. It’s like these Dr’s look down on us for being sick. Somehow it is our fault

By: Shawna

Shawna — Sat, 22 Aug 2020 17:16:01 +0000

I recently had an ANA test showing a titer of 1:160 and an ANA pattern as homogeneous. I have suffered from joint pain for sometime now, but no fevers or rash. RA was ruled out. But I’ve read that a 1:160 could also mean nothing. I’m patiently waiting to hear back from my Dr.s office about it. I was just wondering if anyone else has had this same reading and it was nothing. I need some reassurance.

By: Brenda

Brenda — Sun, 16 Aug 2020 01:07:48 +0000

In reply to Jaki. Doesn’t necessarily mean you have an autoimmune disease. It could be a false positive, or possibly you were having some sort of viral infection at that time. Get re checked and see

By: Sara

Sara — Mon, 08 Jun 2020 14:14:06 +0000

I had two Doctors order tests within 5 days. In one set so had a positive ANA IFA in the next a negative ANA IGg what does this mean?

By: Lynsey Gebel

Lynsey Gebel — Wed, 27 May 2020 02:52:46 +0000

I think I may have lupus but my test was negative. I have extreme pain all over my body, headaches, diarrhea and nausea that lasts for a few days. The pain is so bad that the last episode raised my blood pressure to 153/135. I feel like there is a metal sensation between my joints. After my symptoms subside, every joint in body cracks and pops. I only have these symptoms in the summer and I think they are triggered by eating anti-inflammatory foods like: watermelon, blueberries, strawberries, cinnamon, spinach, apple cider, tea and coffee. I’ve had these symptoms since I was nine. If anyone can point me in the right direction to find a diagnosis I would really appreciate it!

By: Alexandra

Alexandra — Tue, 28 Apr 2020 17:43:57 +0000

I haven’t had my tests yet, I have a tell -appointment on Monday but I’ve had all my the symptoms for years, thinking it was so many other things until recently when my shoulder to wrist starters with a sharp pain, giving spasms and tremors. I’ve had a fever off an on weirdly and a rash on my hand of the same arm. Now looking it all makes sense. Can I be diagnosed without the tests?