Comments on: Glucocorticoids and Lupus https://lupuscorner.com/glucocorticoids-and-lupus/ Health Info on Lupus Symptoms, Treatments & Research Wed, 20 Dec 2023 17:31:22 +0000 hourly 1 https://wordpress.org/?v=6.2.4 By: Katrina https://lupuscorner.com/glucocorticoids-and-lupus/#comment-309847 Wed, 20 Dec 2023 17:31:22 +0000 https://lupuscorner.com/?p=5607#comment-309847 I had SLE, APLS, Raynaud’s Phenomenon, Sjorgren’s Syndrome all diagnosed in 2005, although I have likely had SLE since I was 12yo. I had an symbolic stroke in 2007 after a clot formed in my right arm and extended through my shoulder circulation and into my superior vena cava. In August 2023 I was diagnosed with insulin requiring Type 2 Diabetes and I struggle with depression, anxiety and complex PTSD. I have found that the prednisolone causes a worsening of depression and anxiety. Thus in the event of a flare, my rheumatologist and I use a regimen of starting the prednisolone at 15mg daily for 2 weeks, dropping to 10mg daily for 4 weeks then 5mg daily for 4 weeks then 2.5mg daily for 4 weeks then I can cease it. I monitor my symptoms closely and am reviewed by him every 3 months. Unfortunately I have never achieved remission but as the prednisolone has contributed to weight gain, diabetes and mood issues, as well as pushing my blood sugar up, I would prefer er r to have some tolerable symptoms than be on prednisolone constantly. I should say that if my symptoms worsen during this weaning regimen, then the dose goes back up to the previous dose and I wait a week or two then try again to lower the dose. It doesn’t always work and I have had to spend 6months or more on prednisolone but I would prefer not to if at all possible.

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By: Veronica Harmon-Gunn https://lupuscorner.com/glucocorticoids-and-lupus/#comment-54840 Tue, 20 Apr 2021 19:10:08 +0000 https://lupuscorner.com/?p=5607#comment-54840 This article was extremely helpful for me.

I have not taken Prednisone for a month now. I’m trying my best to control my symptoms with diet exercise, supplements, & over the counter meds.

I’m prediabetic & have high blood pressure. My goal is to reverse that with diet & exercise as well. I improved my eGFR stage 3 kidney disease from 57 to 69.

I’m trying my best to improve my quality of life. Having the best info as a tool is the best medicine.

This article was most helpful for me. It has confirmed my being on the right track dispite some pain. Thanks!

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