Comments on: Increased Ischemic Stroke Risk with Lupus

By: DOROTHY LICIS

DOROTHY LICIS — Sat, 02 Nov 2019 11:03:09 +0000

So what can I do to prevent these attacks? Should I take a baby aspirin or consult my PCP or Rheumatologist? I do get dizzy but I think maybe that’s from the medications?

By: Shanna daniels

Shanna daniels — Tue, 20 Jun 2017 13:29:03 +0000

I had a mild one when I was around two months pregnant. I was walking into my room and all of a sudden had gotten extremely dizzy. So I stopped in the door way to hold myself up and all of a sudden my interest face got numb then extremely tingly. I had no idea but I went to the er right away. One of my clues was that I couldn’t speak the words that my mind was thinking. Like just an example, I’d be thinking of saying water, but maybe tea would come out of my mouth instead or walmart became McDonald’s. Very scary. I couldn’t recieve an mri or a CAT scan due to being pregnant. But I knew. The next day into weeks that had past, one of my arms, from my shoulder down to my finger tips was numb. Could feel nothing but the entire arm was cold to the touch. I had friends that could feel the difference in the temperature by touch both arms at the same time. My slower thinking and speech got better. As well as my arm. I’m only 35yrs old.

By: L

Mon, 05 Jun 2017 12:31:05 +0000

I wish more rheumatologists knew about this. I was plaquenil when blood work showed high markers for SLE type issues. I didn’t have too many issues with pain at the time just bit of stiffness in the last joint of the fingers. That medication made me feel totally worse! I had pain occur in the night I’ve never had, or: elbow pain and clavical pain and my head felt warm and somewhat numb. Within 20 minutes of taking the medication I was a mess! Needless to say I made the decision to stop after day 3 and saw my rheumatologist and he agreed. I have stroke, blood clots and HBP in my family. Listen to your body is what I say.

By: Dana

Dana — Thu, 18 May 2017 19:09:13 +0000

I agree with the studys with sjogrens. My thought patterns are slower, I have numbness in my face and all over and veritigo all the time but nobody talks about why or how. I see rheumatologist and neurologists and have medication but nothing resolved or any answers.

By: brett

brett — Sun, 14 May 2017 22:22:12 +0000

In reply to Leona Zeiset. Hello Leona - this study was only on people with lupus. However, this article on Medscape notes that people with Sjogren's are at a higher risk for heart attacks and stroke. Thank you for the suggestion :) It is something we are definitely interested in getting started!

By: Leona Zeiset

Leona Zeiset — Fri, 28 Apr 2017 11:19:09 +0000

Does this also apply to Sjogrens, which is called a “sister” to Lupus ?

It would be helpful to have a site like this for us “Sjogies”