Comments on: Lupus Flares: Is There Such a Thing as Normal? https://lupuscorner.com/lupus-flares-such-a-thing-normal/ Health Info on Lupus Symptoms, Treatments & Research Tue, 29 Nov 2022 14:42:58 +0000 hourly 1 https://wordpress.org/?v=6.2.4 By: Cindy Carlisle https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-249443 Tue, 29 Nov 2022 14:42:58 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-249443 In reply to Trudy.

Exactly!!! It’s a vicious circl!! And I take care of my aging parents. With this situation my flares are constant. I have about 1 good day a week.

]]> By: Megan https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-243652 Wed, 26 Oct 2022 17:09:13 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-243652 In reply to Georgia.

omg I’m glad I read this. I’ve had some symptoms of this for year I e tiredness but been able to shrugg it off.
however may I had what looked like a tick bite. I had treatment for it and ever since my symptoms have got worse and worse.
my current tests have shown weakly positive which doesn’t rule lupus out or in. currently awaiting further tests

]]> By: Megan https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-243653 Wed, 26 Oct 2022 17:09:13 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-243653 In reply to Georgia.

omg I’m glad I read this. I’ve had some symptoms of this for year I e tiredness but been able to shrugg it off.
however may I had what looked like a tick bite. I had treatment for it and ever since my symptoms have got worse and worse.
my current tests have shown weakly positive which doesn’t rule lupus out or in. currently awaiting further tests

]]> By: Megan https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-243654 Wed, 26 Oct 2022 17:09:13 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-243654 In reply to Georgia.

omg I’m glad I read this. I’ve had some symptoms of this for year I e tiredness but been able to shrugg it off.
however may I had what looked like a tick bite. I had treatment for it and ever since my symptoms have got worse and worse.
my current tests have shown weakly positive which doesn’t rule lupus out or in. currently awaiting further tests

]]> By: Megan https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-243655 Wed, 26 Oct 2022 17:09:13 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-243655 In reply to Georgia.

omg I’m glad I read this. I’ve had some symptoms of this for year I e tiredness but been able to shrugg it off.
however may I had what looked like a tick bite. I had treatment for it and ever since my symptoms have got worse and worse.
my current tests have shown weakly positive which doesn’t rule lupus out or in. currently awaiting further tests

]]> By: Megan https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-243651 Wed, 26 Oct 2022 17:09:13 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-243651 In reply to Georgia.

omg I’m glad I read this. I’ve had some symptoms of this for year I e tiredness but been able to shrugg it off.
however may I had what looked like a tick bite. I had treatment for it and ever since my symptoms have got worse and worse.
my current tests have shown weakly positive which doesn’t rule lupus out or in. currently awaiting further tests

]]> By: Truman Ronald (Ron) Coates https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-241996 Wed, 19 Oct 2022 01:27:22 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-241996 I’m recovering from a 3-week flare. One of the worst I’ve had. But I always do recover. I got Lupus in May 2001. As I was unable to take any medication for it, the odds were that I’d be dead within 5 years. So much for odds! Sometimes I say, “Lord, get me out of here,” but I guess it’s not my time yet!

]]> By: Marilynn Kline https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-203212 Sun, 26 Jun 2022 19:05:06 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-203212 I’m only 3 weeks into a horrible rash – late 70’s & didn’t expect this. Blood tests show Lupus and Sjogren’s Syndrom. Started taking Hydroxychloraquin and using a cream. My doctor put me on Prednisone for 30 days – I had to QUIT taking it after only 4 days, horrible gut problems. Seeing a rheumatologist in a few days, probably more blood tests. I don’t have pain, just look like a walking burn victim who ITCHES. I really don’t know what to expect except that I’ve ordered SPF shirts (TEXAS SUN!) and wear hats or carry an umbrelle outside. Basically gardening only at night.

]]> By: Marilynn Kline https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-203213 Sun, 26 Jun 2022 19:05:06 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-203213 I’m only 3 weeks into a horrible rash – late 70’s & didn’t expect this. Blood tests show Lupus and Sjogren’s Syndrom. Started taking Hydroxychloraquin and using a cream. My doctor put me on Prednisone for 30 days – I had to QUIT taking it after only 4 days, horrible gut problems. Seeing a rheumatologist in a few days, probably more blood tests. I don’t have pain, just look like a walking burn victim who ITCHES. I really don’t know what to expect except that I’ve ordered SPF shirts (TEXAS SUN!) and wear hats or carry an umbrelle outside. Basically gardening only at night.

]]> By: Georgia https://lupuscorner.com/lupus-flares-such-a-thing-normal/#comment-158027 Tue, 05 Apr 2022 00:30:24 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=1328#comment-158027 Has anyone considered tick or other insect-borne bacterial infections??! I have not been diagnosed with anything other than Seronegative Arthritis. Despite not having a Lupus diagnosis I have had all the symptoms discussed above for over 20 years. My illness is advanced and although I am 45, it has almost killed me 3 times. I have been on antibiotics for over a year and just started to clear a number of infections in a number of my different systems- respiratory, inner ear, stomach, g.I tract, skin….I was unaware symptomatically that I had any latent infections!? My dr and I just had a hunch that there was an underlying infection causing the debilitating pain and arthritis. As the infections leave my system, I can see the spirochetes leaving my skin, and I now know for certain it is Lyme disease…. But now I’m now considering that perhaps Lupus is not genetic but acquired through ticks or other biting insects and could be curable? Has anyone theorized about this?!

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