Comments on: Lupus Headaches vs Migraines – What’s the Difference?

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By: Tammie Wong

Tammie Wong — Tue, 20 Jul 2021 12:26:25 +0000

I’ve recently been diagnosed with lupus and am suffering with chronic migraines. I have just had mri and am waiting to hear back from my doctor. The pain is terrible and sleep is nearly impossible. I cat nap. I cannot handle heat (I live in California too!) and am tired all the time. I am just learning about lupus. Praying for everyone here

By: Sarah Marie Martin

Sarah Marie Martin — Sat, 17 Jul 2021 17:43:21 +0000

I’ve had SLE for 30 years but lived in Pacific NW. Little Sun. Moved to AZ two years ago and now have chronic migraine-like headaches and Cebreal small vascular disease confirmed on MRI scans. Do I move out of AZ?

By: Alma

Alma — Wed, 24 Mar 2021 19:35:03 +0000

In reply to Eva. For my migraines I’ve been taking Botox shots from chronic pain doctor every 4 months and it has really helped. About heat everything the other people suggested I also do and it seems to help

By: Ana Bassett

Ana Bassett — Sat, 13 Mar 2021 19:28:44 +0000

In reply to Becky. I’ve had Lupus for 20 years and have gone through several stages regarding the sun. I love being outside in Houston and I especially love working in my backyard! At first I would breakout in little water bible bumps on exposed areas, as if I my sweat glads would get stopped up and would itch. Then and no I’ll breakout in a itchy rash that occurs under the skin. Almost in a web effect. Afterwards in all cases I would feel drained and on occasion I’d get a headache. Now I’ve learned that when my body gets too hot, I get those symptoms. Answer: I jump in the pool regularly or get the hose and cool off, especially my head and I drink lots and lots of cold water. I love going to games but I have to be very careful of the heat or I don’t go if I’m not in the shade. I hope this helps and can give you a little relief.

By: Eva

Eva — Fri, 22 Jan 2021 02:16:59 +0000

WATER!!! Staying hydrated constantly has helped me. Not drinking alcohol in the heat. Hat. Sunglasses.

By: Tanya

Tanya — Sat, 08 Aug 2020 02:06:44 +0000

In reply to Becky. I am so glad to read this. I have never had migraines prior to my SLE diagnosis. However, this summer, any time spent outdoors with my children for an extended period of time (even in the shade), brings on the most debilitating migraines. They are also brought on by hormones (period) and if I get too little sleep. Considering this was never a problem for me before i'm convinced it must be lupus related to some degree. I have been on amitryptoline daily as a preventative and have begun using Zomig and Cambia to treat a migraine when it begins. So far the Cambia has been the most helpful but Zomig works as well.....other days nothing helps. I know this post is old but I hope you have found a way to treat yours, and if so please share!!!! :)

By: DinaMay

DinaMay — Tue, 10 Dec 2019 19:54:03 +0000

@Becky, I have suffered from lupus and from migraines, so I understand your dilemma. I don’t know what all your triggers are – things that tend to bring on migraine attacks – but I do know mine. Just covering up is often not enough to keep me migraine-free, either. Light is a major trigger, especially bright light. So you might try carrying sunglasses around to slip on quickly whenever you go outside. I got some that not only cover the front of the eyes, but also have wide earpieces to keep light out from the side, as well as a little “roof” that keeps out the light that comes from above. These were a real lifesaver for me when I lived in Texas.
As far as covering up when you go out, there are things you can do to make it easier to do this more often. For awhile I wore a hat every time I went out, hanging a couple by each door or wearing the hat indoors and out. I couldn’t take the extra heat of wearing long sleeves in the summer. But some things that limit sun damage include seeking shady spots whenever possible or throwing a damp towel over both shoulders so that the back of my neck was covered. You might try experimenting to see if a certain part of your body is more sensitive than another, in a similar way. I hope this helps.

By: Becky

Becky — Sun, 20 Oct 2019 15:47:27 +0000

Recently diagnosed with lupus and have been getting migraines the last few months that completely shut me down. The last four of them all came after I had direct sun exposure. I know I should avoid direct sun exposure, but I live on a farm, and sometimes I can’t. I try to wear long sleeves and wide brimmed hats, but I am still getting the headaches. Any advice on how to manage the headaches? I am trying to stay out of the sun as much as I can.