Comments on: Joint Pain & Swelling: Symptoms of Lupus https://lupuscorner.com/lupus-joint-pain/ Health Info on Lupus Symptoms, Treatments & Research Tue, 27 Jul 2021 21:42:04 +0000 hourly 1 https://wordpress.org/?v=6.2.4 By: Lisa McCormick https://lupuscorner.com/lupus-joint-pain/#comment-73109 Tue, 27 Jul 2021 21:42:04 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=2357#comment-73109 I wish I could correct my post. My fingers and hands no longer seem to respond correctly. The grammar and misspellings may not be correct but my thoughts are true.

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By: Lisa McCormick https://lupuscorner.com/lupus-joint-pain/#comment-73107 Tue, 27 Jul 2021 21:36:46 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=2357#comment-73107 In reply to Tihearah Kinloch.

Just wanted to let you know, I have been there am still there. Unfortunately the sex of a person and the color of their skin does matter. It should not but it does. Did you know that females cadevars (sp) were not used until the late 1960’s? In honest, 1970’s, but I can argue that later. All medical knowledge has been based on male anatomy for centuries. I remember being told by a male and female doctor that the amount of blood and uteran wall bleed out during any menstrual cycle is less than a cup. Stay strong my friend. We can get through this together.

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By: Kelly Ehrich https://lupuscorner.com/lupus-joint-pain/#comment-48320 Mon, 22 Mar 2021 21:04:33 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=2357#comment-48320 In reply to Tihearah Kinloch.

Baby listen, it has NOTHING to do with the color of our skin. The doctors just don’t care. They are ignorant and severely lacking compassion and empathy. All they care about is all the money they’re making off us.

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By: Jennifer https://lupuscorner.com/lupus-joint-pain/#comment-31650 Tue, 28 Apr 2020 22:13:09 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=2357#comment-31650 In reply to Tihearah Kinloch.

I’m not sure of your ethnicity, but I can assure you that I have been treated horribly throughout the entire process from doctors, nurses, and friends/family as well. I am white, and live in a fairly affluent area. What I have seen is a lot of age discrimination. I don’t know how old you are, but I was diagnosed at 17, and have heard “your too young to feel that bad or have those levels of pain” so often it makes me want to punch the next one to say it! I have been outright ignored, dismissed, talked down to, accused of drug seeking, being overly dramatic, or it’s all in my head. I am now 37 and while I still get that a lot, the exact same problems get completely different responses than when I was much younger. So possibly your age is more of a factor than your race? Either way it sucks and most doctors fail to put much effort into getting an accurate diagnosis, even then don’t want to be bothered when the treatment they give doesn’t help. Not to mention there is ZERO compassion towards these invisible diseases. I’ve often wished that I had something like cancer instead, so people would believe me and do something to help. I know that sounds ugly and horrible but it’s how I feel sometimes. Best of luck to you.

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By: Tihearah Kinloch https://lupuscorner.com/lupus-joint-pain/#comment-30194 Sat, 15 Feb 2020 03:44:47 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=2357#comment-30194 I’m sick of these doctors. I have Lupus ( SLE ), and serve Fibromyalgia and still can’t get help with my pain. So far I have been doing the best I can and it’s becoming very difficult. I’m taking classes to get my GED 4 days a week , 2 hour a day. I have yet to make it the whole 4 days let alone sit for the whole 2 hours. my teacher is working with me, if I need to leave early or can’t make it she understand. My own family don’t understand and that’s sad. I stay away from my family, I don’t have any friends and these doctors in Charleston SC don’t give a damm. I’m starting to believe it’s because of the color of my skin that I’ve been struggling to get help for my illnesses, that’s sad.

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By: Kelley Davis https://lupuscorner.com/lupus-joint-pain/#comment-28004 Thu, 10 Oct 2019 20:42:37 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=2357#comment-28004 I agree with everything that u are saying. I’m 59, happily single, with 2 grown daughters, and 2 amazing granddaughters. My parent’s are both elderly and ill. I have rented the apartment next to them to help out, but lately can barely get out of bed. I use cbd vapors for my pain, but, my pain is so bad in my hands, fingers, knees, and tops of both my feet. I just want to be alive again!!!!. I can’t even get help with daily chores, for MYSELF, i feel guilty that i can’t hardly help m6 parent’s anymore. Medicare does not cover any IHS help, medical wants me to pay $900 a month share 0
Of cost ($1,380) is my permanent disability check monthy. I can’t call a friend or stay in bed all day, it’s just me!!!!! I would like one of these doctors or government officials to experience this daily hell, maybe then, someone, will help us keep our houses and pain relief!!!!! At this point, my anger and disappointment, with lack of help for us lupus patients is becoming overwhelming. Thx KELLEY

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By: Stephanie Keef https://lupuscorner.com/lupus-joint-pain/#comment-27280 Tue, 29 Jan 2019 17:21:08 +0000 https://lupus-appli-1kjf77zfuvjpc-635402343.us-east-1.elb.amazonaws.com/?p=2357#comment-27280 I feel like these tips were written with good intentions, but very unrealistic. I live with daily joint pain and swelling from Lupus and work full-time. I do have FMLA time off for those days where I just can’t take it, but I don’t use very many. It’s more of a “pain acceptance” situation. Between working, parenting two kids and being a wife, managing my joint pain with a soaking bath or calling a friend to come do stuff for me is almost comical. Unless I’m in the hospital or sleeping at night, I don’t slow down. And I’m already on every kind of drug you can think of to try to relieve the pain. I get what you guys are saying, but who really has time for a soaking bath?

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