Comments on: Lupus Nephritis: 6 Classes of Kidney Disease

By: Tee-Rex

Tee-Rex — Sun, 09 May 2021 01:18:25 +0000

In reply to Mary Gutierrez. Yes/ 10yr Lupus/ I just started using Natural treatments/ Marujaua(any form)cbd for sure/ sea moss (keep it simple w/capsules / B12/CBD oil/ waaaaay better results / nnnnnoooo more pharm meds 4me/ VitC/ ALL pain doesn't clear but definitely treating EACH symptom one@a time/ STEROIDS ARE KNOWN FOR DEMENTIA GUYS/// don't be afraid to switch up BUT according to what's BEST 4YOU.... CAN'T DIE TRYING diff things/ depression TOUGH TOO BUT HEY remembering RIGHT AWAY that YOU THINK YOU'RE DEPRESSED BUT YOU'RE REALLY NOT....

By: Brenda Greer

Brenda Greer — Mon, 12 Apr 2021 03:20:25 +0000

In reply to Melissa Blankenship. I was on Hydrochloroquin for 18 years. I developed crystals in my eyes. I can no longer use it for my joint pains. I’m hurting so bad now. Make sure you have regular eyes check ups. It’s not reversible.

By: Crystal

Crystal — Sat, 20 Mar 2021 23:00:08 +0000

In reply to Katherine D Sanberg. Experiencing the same. I can also feel the inflammation in the kidney when this happens. I also have random proteinuria episodes.

By: Joyce McGuirk

Joyce McGuirk — Sun, 21 Feb 2021 16:21:16 +0000

In reply to Katherine D Sanberg. I’m experiencing the same thing- Between right hip, and right shoulder blade on my back ... it’s driving me insane

By: Michelle Lopez

Michelle Lopez — Mon, 11 Jan 2021 07:52:48 +0000

Hi, I have been struggling with hives and facial edema or angioedema going on 2 years now. My labs come back extremely low on C3 and C4 complements and a low C1Q. The tests have come back a couple of times in the same manner, from my research I have seen that this points to SLE with Acquired angioedema. I am going to see a rheumatologist on the 15th but I have been retaining water at a rapid rate and am quite concerned about this. I can’t seem to stop it. Water pills seem to have slowed it but I am still gaining. Any advice?

By: Melissa Blankenship

Melissa Blankenship — Wed, 06 Jan 2021 07:06:46 +0000

In reply to Michelle Argueta. I have been on hydroxychloroquin for 4 years now. I carried my baby just fine. I had to do 2 blood thinner shots a day for 7 months and a lot of extra ultrasounds and appointments. I would discuss this possibility with your doctor.

By: Jenine K

Jenine K — Fri, 01 Jan 2021 23:12:45 +0000

In reply to wayne russell morrow. Not funny

By: Jessica

Jessica — Fri, 06 Nov 2020 04:50:52 +0000

In reply to Marietta Walker. You may want to go to a nephrologist and confirm that you do not have PKD, Polycystic Kidney Disease. It can be very serious, depending on how quickly the cysts grow and type one has. It is a directly heritable disease. My mom just had a kidney transplant as a result of the disease. I have SLE, but did not inherit PKD, though both my sister and my niece did. Whenever I hear about cysts instead of lesions or scarring, I think of PKD not lupus.

By: Dana Dunn

Dana Dunn — Thu, 29 Oct 2020 03:38:30 +0000

In reply to Sherry. I have SLE, was diagnosed at 17, again at 25, I'm now 49. I have right flank pain, I get cysts, they are very painful, I had one burst once, it was like a hot poker shoved in my upper back. Have a doctor check protien and creatinine levels in your blood. If urine is foamy or cloudy with side pain it could be the reason. They can also do an ultrasound for cysts.

By: Georgeana

Georgeana — Mon, 19 Oct 2020 22:52:18 +0000

I am in bad pain every day