Comments on: Mindfulness and Lupus by Dr. Donald Thomas https://lupuscorner.com/mindfulness-and-lupus-by-dr-donald-thomas/ Health Info on Lupus Symptoms, Treatments & Research Wed, 01 Mar 2023 22:08:00 +0000 hourly 1 https://wordpress.org/?v=6.2.4 By: Maureen https://lupuscorner.com/mindfulness-and-lupus-by-dr-donald-thomas/#comment-261699 Wed, 01 Mar 2023 22:08:00 +0000 https://lupuscorner.com/?p=6288#comment-261699 DR. Thomas, Thank you very much for your informative and encouraging article. Lately, while I have practiced deep breathing for years, I have been trying to start begin a more mediative type of mindfulness. Your writing has given me the ‘push’ and the better understanding that I needed. I have awful trouble with sleep (up every 2-3 hours every night) so now I will add it to my breathing routine and hope for the best over time. Thank You! Keep well. Maureen

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By: Maureen https://lupuscorner.com/mindfulness-and-lupus-by-dr-donald-thomas/#comment-261700 Wed, 01 Mar 2023 22:08:00 +0000 https://lupuscorner.com/?p=6288#comment-261700 DR. Thomas, Thank you very much for your informative and encouraging article. Lately, while I have practiced deep breathing for years, I have been trying to start begin a more mediative type of mindfulness. Your writing has given me the ‘push’ and the better understanding that I needed. I have awful trouble with sleep (up every 2-3 hours every night) so now I will add it to my breathing routine and hope for the best over time. Thank You! Keep well. Maureen

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By: Donald Thomas, MD https://lupuscorner.com/mindfulness-and-lupus-by-dr-donald-thomas/#comment-259935 Thu, 16 Feb 2023 22:35:14 +0000 https://lupuscorner.com/?p=6288#comment-259935 In reply to GG.

GG: Thanks so much for reading and commenting on my article. It isn’t that mindfulness doesn’t reduce lupus disease activity, it is just not proven to do so (a big difference). We must keep in mind that it usually takes much larger studies to prove that interventions work in treating lupus because it is so complicated; every SLE patient is different from the others. For example, the Benlysta clinical trials required over 800 patients in each research study to prove efficacy. It is remarkable that such tiny mindfulness studies showed improvements in pain and quality of life in lupus patients. The science is fascinating; more research is needed (larger studies), but in the meantime, it is such as simple thing to do each day and reap potentially positive benefits (I practice it myself now along with exercise, eating well, sleeping enough, etc). Keep up the search for knowledge as we drive on to try to find better treatments and hopefully, some day, a cure… Donald Thomas, MD

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By: GG https://lupuscorner.com/mindfulness-and-lupus-by-dr-donald-thomas/#comment-259490 Tue, 14 Feb 2023 17:03:50 +0000 https://lupuscorner.com/?p=6288#comment-259490 If I’m understanding the article and research, mindfulness techniques don’t help decrease disease activity. They do help you deal with your reactions to pain and other symptoms. So you feel better about having the disease…which doesn’t help if you’ve already accepted the disease and are functioning reasonably well. It sounds like a bandaid.

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