Comments on: Share Your Story: Sandra’s Diagnosis

By: Dorothea Palumbo

Dorothea Palumbo — Thu, 10 Oct 2019 03:09:10 +0000

I attend a large Rheumatology Practice Always see a Physician assistant. Nice enough but I’m not thrilled with this type of care.

By: Sharon

Sharon — Wed, 18 Sep 2019 10:19:56 +0000

I was diagnosed in 2017. I was married, no child, and only 29 at the time. Doctor strongly advised me to think about not conceiving. In 2018, I was blessed with a beautiful baby girl. I take HCQs every day, at 10:00 pm like clockwork. I am a strong believer in God, and I know I am healed, just waiting for the manifestation of it. My biggest struggle is joint pain. It started off in my elbows (those are 100% healed now), but now the pain is in my wrists and fingers. i get numb and stiff in the mornings- all the time. My HB was low, it has normalized with time. May God heal you, too. Keep being happy!

By: Alicia Davis-Alfsro

Alicia Davis-Alfsro — Sat, 02 Mar 2019 05:04:19 +0000

I am a Lupus warrior too and your really touched me. I can so relate to some things you have gone through and you are right to say having good doctors really does help. I have a Reumatologist along with a pulmonologist, Cardiologist, Gastrointerologist, Neurologist, pain Specialist, Psychologist for Cognitive therapy, orthopedic Specialist, and ENT. I’m so sick of docotrs appts, but at the same time they are like my new family, they show a lot of compassion, and very supportive. I have a support dog, and she goes everywhere with me, to all my docotr’s visit and hospital visit. I don’t think i could have made it this far without her.