Comments on: Social Media, Chronic Diseases, and Lupus

By: Steven Johnson

Steven Johnson — Tue, 18 Jan 2022 09:39:52 +0000

These elements are basically just a group of other elements such as columns, boxes, text, images and lists.

By: Wondershare Filmora X review

Wondershare Filmora X review — Tue, 27 Apr 2021 06:45:19 +0000

I have read your blog post and I found it’s quite interesting. I hope you continue posting this kind of more blog post.

By: Maria Clement

Maria Clement — Sun, 13 Dec 2020 19:49:08 +0000

Yes, if you’re using social media, use your analytical brain! But I can’t emphasize enough how much support it’s given me. I’ve had lupus for 11 years and have never met another person with it face to face (small country, no formal support groups etc). It also took 7 years to get the correct diagnosis. I joined 3 online lupus support groups in desperation and have had more help and information than I’ve had from any medical professional yet; received support when I was down, and never once was treated like I was making it up or exaggerating. Thank you to all positive, helpful online support group members…you are making more difference than you know.

By: Diana

Diana — Thu, 24 Sep 2020 03:25:51 +0000

A big downside to the online groups I’ve been in is that all too often some member begins trying to give others pseudo-medical advice, encouraging others to use the snake oil treatment that supposedly cured them. Sometimes it’s relatively harmless, like taking lots of vitamin supplements. But other times the stuff they’re pushing is actually dangerous – like drinking hydrogen peroxide (DO NOT DO THIS!!!). I guess a good rule of thumb is to run any suggestion by your doctor first and if it makes his or her hair stand on end, don’t do it!

By: Melita Pitts

Melita Pitts — Tue, 22 Sep 2020 20:40:07 +0000

I’m in a Facebook group whose members all have lupus!!!! It has helped me a great deal!!!!!