Comments on: Managing Energy, The Spoon Theory, and Lupus

By: diane

diane — Fri, 29 Apr 2022 17:57:44 +0000

I loved reading this. I felt I was going nuts. I use the number theory. I was diagnosed in my 60’s and don’t fit the demographic but there you are. I say when I was younger and a marathoner I started out with 1000 upon rising . Now it is 100 and quickly dwindles to 0. So when I get up I’m at 100-20 for getting up,-15 for showering,-10 for being near 70, -10 for going downstairs, -10 for feeding the cat and doing litter, -15 for getting dressed as I have to put on compression socks,-20 for preparing dinner= crash at 7. Oh and I was a nurse-no more. And even docs I have to see say ‘but you look so well’.

By: Jeanne

Jeanne — Wed, 20 Oct 2021 15:40:27 +0000

This was a very interesting article. I always love reading more about Lupus which I have had since age 28 & now 66. The road has been long & a challenge but each & every day is different. Thanks for sharing the spoon therapy.

By: Judy L Gordon

Judy L Gordon — Fri, 22 Jan 2021 16:25:04 +0000

This is exactly how I feel. I have told my doctor how lfeel. I get the same old run around

By: Anita

Anita — Tue, 12 Nov 2019 23:50:29 +0000

I enjoyed the spoon theory. I know many Tim I ha been asked. Lupus, you ha Lupus. You do not look different. Why are you so tired. Now I will explain how I feel by using the spoon theory. Thank you very much.

By: Elizabeth Avaloslu

Elizabeth Avaloslu — Wed, 14 Aug 2019 23:54:55 +0000

This is helpful and so very true. I was diagnosed with SLE in 2008. I have had to learn how to Pace myself, plan ahead as much as I can. It’s taken a while to learn how and what I have to do to take care of myself so I can still take care of my family. Some days I do absolutely nothing. I just rest. It usually makes the next day better.