https://lupuscorner.com/students-and-lupus/ Health Info on Lupus Symptoms, Treatments & Research Wed, 07 Sep 2022 15:33:47 +0000 hourly 1 https://wordpress.org/?v=6.2.4 https://lupuscorner.com/students-and-lupus/#comment-233343 Tue, 06 Sep 2022 15:09:20 +0000 https://lupuscorner.com/?p=6202#comment-233343 Thanks for this article , when my son was in HS, we had a 504 plan for him . He was given two sets of textbooks , one to leave at school and one for home . Now textbooks are all online ! He also had access to the school nurse at any time, extra test time, extra time between classes . Now in college , he was able to bring an air conditioner for his dorm .

]]> https://lupuscorner.com/students-and-lupus/#comment-233344 Tue, 06 Sep 2022 15:09:20 +0000 https://lupuscorner.com/?p=6202#comment-233344 Thanks for this article , when my son was in HS, we had a 504 plan for him . He was given two sets of textbooks , one to leave at school and one for home . Now textbooks are all online ! He also had access to the school nurse at any time, extra test time, extra time between classes . Now in college , he was able to bring an air conditioner for his dorm .

]]> https://lupuscorner.com/students-and-lupus/#comment-233345 Tue, 06 Sep 2022 15:09:20 +0000 https://lupuscorner.com/?p=6202#comment-233345 Thanks for this article , when my son was in HS, we had a 504 plan for him . He was given two sets of textbooks , one to leave at school and one for home . Now textbooks are all online ! He also had access to the school nurse at any time, extra test time, extra time between classes . Now in college , he was able to bring an air conditioner for his dorm .

]]> https://lupuscorner.com/students-and-lupus/#comment-233347 Tue, 06 Sep 2022 15:09:20 +0000 https://lupuscorner.com/?p=6202#comment-233347 I am an adult student – retuning to school after years of disability interrupted my career. I have a lot of insights which may be helpful to share on this matter. The particular article was about children with lupus- and I’m not so sure I handled the mother with lupus part in the best manner. But as far as being a older student, I have found it necessary to take advantage of the disability service in every college which provides reasonable accommodations. I have learned the hard way that even if you are having a particularly good period of time and lupus isn’t affecting your daily functioning, even a small flare can get in the way of doing your best. The nature of lupus obviously gives everyone different focus areas for accommodations, but for every student with lupus , I think the accommodation of extended deadlines in very important. Last semester, I spoke to a professor and offered medical documentation. None of it mattered. It was too late to enroll in a accommodations plan. And because of a bad flare, I received a B in a course where I earned an A. This is very frustrating as I’m sure anyone with lupus, who works extra hard in the first place, understands.
Other accommodations are more personal. At this age, I have neuropathy and other neuro involvement, where my sister (not a student) has very poor visual involvement.
Im not sure if this helps anyone. But I had a child with autism who required accommodations and if she had lupus, the first one I would want for her is extended deadlines and ability to work from home.

]]> https://lupuscorner.com/students-and-lupus/#comment-233348 Tue, 06 Sep 2022 15:09:20 +0000 https://lupuscorner.com/?p=6202#comment-233348 I am an adult student – retuning to school after years of disability interrupted my career. I have a lot of insights which may be helpful to share on this matter. The particular article was about children with lupus- and I’m not so sure I handled the mother with lupus part in the best manner. But as far as being a older student, I have found it necessary to take advantage of the disability service in every college which provides reasonable accommodations. I have learned the hard way that even if you are having a particularly good period of time and lupus isn’t affecting your daily functioning, even a small flare can get in the way of doing your best. The nature of lupus obviously gives everyone different focus areas for accommodations, but for every student with lupus , I think the accommodation of extended deadlines in very important. Last semester, I spoke to a professor and offered medical documentation. None of it mattered. It was too late to enroll in a accommodations plan. And because of a bad flare, I received a B in a course where I earned an A. This is very frustrating as I’m sure anyone with lupus, who works extra hard in the first place, understands.
Other accommodations are more personal. At this age, I have neuropathy and other neuro involvement, where my sister (not a student) has very poor visual involvement.
Im not sure if this helps anyone. But I had a child with autism who required accommodations and if she had lupus, the first one I would want for her is extended deadlines and ability to work from home.

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