Comments on: The Four Subgroups of Systemic Lupus

By: Pat Dickson

Pat Dickson — Tue, 12 Apr 2022 23:22:59 +0000

I seem to be in all of the sub groups . I started at age 42 diagnosed with SLE involving joints and skin then my blood joined in ., after attending an eye hospital for various problems it was noted that I had Sjogrens! Then sometime at the end of 2017/beginning 2018 I had a stroke which I didn’t know I’d had until 3 months later when everything started to go wrong . I now have Lupus Nephritis and the clotting antibodies! I now also have a consultant who took over all my care and I’ve been on immunosuppressants and other drugs including Warfarin since December 2018 and appear to be in remission! Think I’ll be taking these drugs for at least another 18 months ! I am grateful to the consultant who took over my care. I’m now 66 .

By: Pat Dickson

Pat Dickson — Tue, 12 Apr 2022 23:22:59 +0000

By: Chris

Chris — Sat, 15 Jan 2022 18:45:56 +0000

In reply to Kelly Renfroe. I was in Plaquinil for several years without much success. I tried CBD in large does during a flame up and I was really encouraged by the results. I went from having horrible symptoms around my eyes and mouth for over a year. I started taking 5,000 mcg CBD and my symptoms subsided in a month. I have been using CBD for 5 years now and I feel it is the best treatment for me.

By: Slfadetta

Slfadetta — Tue, 04 Jan 2022 23:59:50 +0000

Is there going to be a study for people if color? I BBC would find these statistics very intriguing.

By: Kelly

Kelly — Tue, 04 Jan 2022 19:09:08 +0000

In reply to Marie Rudden MD. I was recently diagnosed with Sjogrens also after about 3 years with SLE. I’m now 59. All medications except hydroxy dropped my WBC too low very rapidly. We share a lot of the same symptoms I believe. Im extremely encouraged by this article!

By: Kelly Renfroe

Kelly Renfroe — Tue, 04 Jan 2022 19:03:59 +0000

This article has helped me to understand how Lupus works more than any other sessions I’ve had with my Physicians or any other article I’ve read! I was diagnosed about 3 years ago and have gone through a lot of medication trials to find that hydroxychloriquine is the only treatment I can tolerate. I am so encouraged to read about his study and it answers questions I’ve had regarding promising treatments or cures! Thank you for publishing in such a manner that is clear and gives me hope.

By: Marie Rudden MD

Marie Rudden MD — Tue, 04 Jan 2022 15:48:07 +0000

I was diagnosed first with Sjogren’s and while I do not have the specific Sjogren’s antibodies, I have all the sicca symptoms plus Sjogren’s related neuropathy and pulmonary disease . I did have very high levels of anti-Dana antibodies, Before I started Methotrexate and prednisone , I had steadily decreasing gfr’s (kidneys) and white blood cell counts, significant malar rashes and other skin manifestations, as well as frequent infections . So I seem to fit into category 1. However, as I have been treated, my arthritic symptoms, neuropathy and fatigue have been most prominent. I also was diagnosed in my 50’s. In this way, I seem to fit into category 4 at present. So- this research really should take into account the time since diagnosis, the kinds of treatments one receives, etc.