Comments on: TULIP 2 Phase III and Type 1 Interferon Lupus Treatments

By: Glenda Kessell

Glenda Kessell — Sat, 30 May 2020 12:30:53 +0000

What potentially will the criteria be to use this drug?

By: Sonya Arthur

Sonya Arthur — Wed, 19 Feb 2020 12:49:27 +0000

In reply to Edie Aultmon. Good question Eddie. That’s what I was wanting to know as well.

By: Sally

Sally — Tue, 18 Feb 2020 16:23:04 +0000

In reply to Roxanne Adkins. Would it be possible to switch to weekly subcutaneous injections?

By: Sharmeale Adamson

Sharmeale Adamson — Tue, 04 Feb 2020 19:54:56 +0000

I tried Benlysta, Rituxan and the host of other “standard” therapies for SLE, but none offered any benefit or improvement. Some actually complicated my situation with adverse reactions. This mechanism of action is intriguing. I’ve been of all therapies for 5 miserable years…so I’m glad to come across this information!

By: Anita S

Anita S — Mon, 16 Dec 2019 15:45:25 +0000

When will this be available? i was on Benlysta for 5 years, but developed cavitary pneumonia and cannot restart due to the risk for reinfection.

By: Kristi Kinkade

Kristi Kinkade — Sat, 14 Dec 2019 23:52:34 +0000

I also was on Benlysta infusions for over 3+ years, I tried the auto injector and had a severe allergic reaction to it. I can say that although I was always very sensitive to benlysta, and had to stop the infusions because I started not feeling like myself. Was doing crazy things, not like myself..I am now feeling pretty good. But having been diagnosed over 18 years ago, who knows how long this will last? I am interested in anything else that could help with nervous system lupus

By: Lachele

Lachele — Sat, 02 Nov 2019 05:42:00 +0000

I have been diagnosed with SLE and Lupus Nephritis and have already had chemo which was not effective. Please let me know if this would work for my diagnosis. Thank you.

By: Catherine Jones

Catherine Jones — Fri, 27 Sep 2019 21:59:23 +0000

I also have SLE with lupus nephritis. Please let me know.

By: Catherine Jones

Catherine Jones — Fri, 27 Sep 2019 21:58:55 +0000

In reply to Deborah swanson. I also have SLE with lupus nephritis. Please let me know.

By: Lupylady007

Lupylady007 — Thu, 26 Sep 2019 02:09:44 +0000

I have lupus that attacks mainly my nervous system, I tried Benlysta for 3+ yrs at 1st it made me feel better but I had to stop taking it. Was making me not think straight and I was not acting like myself. Would this drug work for people who have nervous system Lupus?