Comments on: What You Need to Know About Neuropsychiatric Lupus

By: Gerrie Gilbert

Gerrie Gilbert — Wed, 08 Mar 2023 01:53:04 +0000

I have dystopia too. How can we find if a study was done.

By: Tracy

Tracy — Wed, 30 Jun 2021 21:23:37 +0000

In reply to Dana Chambers. I have been taking Topamax since well before I was diagnosed with SLE and Sjogren’s for chronic migraines and it has helped a lot with migraines (along with Botox injections every 3-4 months). I also have cervical dystonia that affects the left side of my neck and shoulder which is treated by the botox injections (dystonia is thought to possibly be an autoimmune condition as well). I do feel that my Topamax works as a mood stabilizer along with the Cymbalta I take for depression. If I go off the Topamax I find that my depression and anxiety are not as well controlled.

By: Dana Chambers

Dana Chambers — Tue, 18 May 2021 20:47:30 +0000

Do you find the topamax benefits you as a mood stabilizer as well?

By: Donna Osborne

Donna Osborne — Wed, 12 May 2021 13:17:01 +0000

I have lesions on the white matter of the right frontal lobe. Doctor told me it is common with headache sufferers. I also have aphasia and some trouble concentrating. Migraines too. All started same time the lupus manifested itself. I am greatly improved with plaquenil, Aimovig, topiramate, venlafaxine, Celebrex, and sometimes steroids.