Q&A Forum: How I Raise Lupus Awareness

Raising Lupus Awareness

Lupus Awareness Month is here! Living with lupus can be difficult and these next few weeks are important for educating others about these struggles.

For this month’s LupusCorner Q&A Forum, we asked our contributors to share their personal experiences regarding awareness and educating others about lupus.

NaNa

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

Anonymous Lupus Warrior

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

Anonymous Lupus Warrior

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

Danielle

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

Charlene

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

Tina

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

V

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

How to manage depression and deal with the symptoms that take time to be diagnosed without giving up hope.

Maria C.

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

I’m very reclusive so don’t do public awareness. But I made a big info sheet with cartoons and notes and pictures to go in the kitchen so anyone who visits, and my kids and grandchildren, can have a read and learn something, and remember it hasn’t gone away even if I’m OK that day.

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

I think more practitioners should be taught about the emerging subtypes – including geographical differences – so they have a better understanding of the different types of presentations and don’t write patients off because they don’t fit a certain mould, and tailor treatment to fit better.

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

Early (first-stop) treatment/management for flares.

Anonymous Lupus Warrior

Raising awareness can take many forms and can vary from person to person. How do you raise lupus awareness?

When I am out in public (which isn’t very often these days, honestly) and people who casually know me notice & ask me about things like my limp, swollen joints or lesions, I try to (in a sentence or two) give them an idea of what SLE is. Of course, when I was healthier, I used to have many more opportunities to spread awareness.

Education and research are two additional points of emphasis this month. What topics do you think others should know more about when it comes to lupus?

I think the majority of people I come across have no real idea what lupus is, the numerous symptoms related to it, the various types of lupus, that there is still no cure for it & so very few medications to specifically target lupus. I also don’t believe that most people realize how many suffer from lupus & the wide degree of severity from patient to patient (& from day to day).

Learning more about lupus can also extend to Lupus Warriors! What are some key topics that you would like to learn more about?

For 1: I would love to learn more about what current research is being done to determine the cause of systemic lupus. For 2: I feel like I still have more to learn about all the various symptoms that can be directly related to lupus.

Want to Share Your Lupus Story?

Send us an email us at: hello@lupuscorner.com.

Stay strong Lupus Warriors! You got this!