For many people, having lupus can be an isolating and scary proposition. Your friends and loved ones may not understand what you are going through. Life with an invisible illness can be tough. Connecting with other people that understand can make it easier.
The Lupus Foundation of America – Local Chapters
Lupus Foundation of New England
The Hospital for Special Surgery – in New York; programs include:
Ask at your own hospital!
Provides a range of patient services near Los Angeles, CA including conferences, support groups, emergency grants, and summer camp for kids.
LupusCorner for iPhone and for Android is designed for life with lupus. It includes:
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What about inn Australia ?? please
Lupus LA in Los Angeles please!!!!!!
Thank you for the heads up! I’ve added Lupus LA to our list 🙂
Need a support group in Lancaster, Palmdale area of LosAngeles county. And further north Ridgecrest, Bakersfield, Tehachapi in Kern County areas.
The need for guidance, instruction with family providers and lupies themselves is getting very desperate here. Most must drive 2-6 hours to get proper help.
Advocates, group meetings, community awareness is crucial.
Stars are always picking up a cause but for some reason this one is not getting the media coverage it requires. This is worse than Fybromyalgia in fact most ppl with Fybro have a form of lupus.
Gees Sesame Street has a small skit about Lupus why can’t adults get the word out to all people.
Selena Gomez and cindi Lauper have gotten honest and spoken publicly about their battles with Lupus. That helps in the fight of this often “invisible disease”.
We have to spread the word. Be Proactive, answering the question “how are you?” Honestly, instead of the usual reply of “okay, or fine”…
Be honest, i know most people do not really want the real honest answer however, how can they even begin to try to understand IF we do not even give them a truthful answer?
I live in Clovis new Mexico I have lupus and scleroderma and all underlying diseases known except fibromyalgia where is support group
Please add Lupus Foundation of Southern California to the list. We have two free support meetings monthly for patients, family and friends.
Thank you for the recommendation and for sharing information on the services provided by the Lupus Foundation of Southern California. The post has been updated with a link and the information on the support groups! 🙂
I’m in Georgia now. I moved from NY to N.C. I wish I was more active. I use a cane for mobility. I want more activities and events for us. Housing is a issue also. Thanks.
Please we need a support group in Vineland N,J
I’m looking for an attorney in the Atlanta, Georgia area familiar with filing for SSI Disability benefits for people with lupus as well as support groups.
Looking for a support group in Las Vegas.. anyone know of any.
Support group in bilixi ms
I’m in South Africa, in Cape town, are there any support groups there
Looking for a support group in Baltimore Maryland
Anyone know of a support group in the Niceville / Ft Walton Beach area of the Florida Panhandle?
LOOKING FOR A SUPPORT GROUP IN PERRY.GEORGIA
Where in Cape Town South Africa, can I get support
Looking for support group in Chicago, Illinois . South
Looking for support group mabank texasand help understanding all of this
Looking for a group near Marlton,NJ
I’m looking for a support group in Duncan, OK.
Looking for support in Rhode Island
My daughter and I are looking for a local lupus support group in INDIANA,can aneyone help ?
Need to. find a Lupus support group in Boerne tx.
In western NY area, specifically Rochester. Would love to connect
Please add Color Purple lupus, awareness and chronic illness, Inc. We do have fb page. Website is coming soon!
I live in Arlington Texas. Any support groups around this area.
Where can I find a support group in Quebec, Canada? I’m looking to seriously start a AIP diet and really need help…….