Living with Lupus
Managing Energy, The Spoon Theory, and Lupus
Lupus Warriors know the challenges of managing energy carefully. Explaining the delicate balance to...
Skin Health and Lupus
Rashes, ulcers, hyperpigmentation (darker spots on skin) and alopecia (hair loss) are...
Age, Getting Older, and Lupus
The relationship between aging and lupus is a complicated one and can be difficult for people with lupus to navigate. Systemic Lupus Erythematosus, SLE is a lifetime struggle and ageing adds new complications to the mix. Aging makes the body's systems more vulnerable to damage...
Traveling with Lupus: Common Symptoms
Traveling with lupus can often come with added difficulties. Here are symptoms to notice and tips to know when traveling. Stress, travel times, climate, and much more can impact traveling. Let's take a look: Long Transport Times Traveling in a plane or a car for a long period of time can wreak havoc...
Fun, Friends, and Activities for Lupus Warriors
It can be difficult to spend time with friends while having lupus, but the key is to be flexible and understanding, and find other, less-taxing ways to spend time with your friends. Systemic lupus erythematosus is an autoimmune disease that affects organs throughout the body, including the joints,...
Lupus Self-Management and Communication Strategies
An essential part of successful self-management (the management of one’s own condition and symptoms) is to communicate with others, not to do it on one’s own. What is self-management? Self-management is the continuous engagement in your illness, by actively participating in the...
Stress, Treatment, and Lupus
Managing stress is essential for people with lupus because stress can both make lupus worse and also cause lupus symptoms to appear in the first place. Systemic Lupus Erythematosus (SLE) is an autoimmune disease that affects the entire body. Every person with lupus has different...
Moon Face, Facial Swelling, and Lupus
Moon face is a colloquial name for extreme facial swelling. It is a common side effect of certain lupus medications, especially prednisone. We humans are visual creatures. Our face is deeply linked to our identity. Moon face, a swelling or rounding of the face, can have an intense impact on...
Remission and Lupus
Although lupus is not a curable disease, it can be treated to the point where people no longer experience symptoms. This is called remission. Remission is a term used to describe the reduction, into nothing, of the symptoms of an autoimmune or chronic disease for three...
Sleep Tips and Lupus
Tips and tricks for sleeping with lupus. Systemic Lupus Erythematosus (SLE) is an autoimmune disorder, which means that it is heavily effected by stress and the general health of the body, including how well you are sleeping. Sleep is important to a...
Lupus Headaches: Causes, Types, and Treatments
Lupus headaches are a notorious and well-known symptom of lupus. However, they can also be difficult to describe for Lupus Warriors. Headaches are a common symptom of systemic lupus erythematosus (SLE). Previous studies have varied on their expected prevalence, but up to 78% of...