Living with Lupus
Home Medical Devices, Independence, and Lupus
Equipping yourself with the right tools can help you live more independently...
Mindfulness-Based Stress Reduction & Chronic Pain
Many Lupus Warriors are familiar with chronic pain -- the kind that lasts for...
Caffeine Intake and Lupus | Staying Alert
Should you drink that brew? Coffee and other caffeine-containing foods are a mixed bag – both good and bad - for people with lupus. Fatigue is a common symptom of lupus, and it can come along with brain fog and
Patient-Reported Outcomes, Quality of Life, and Lupus
Many aspects of lupus can't be recorded with tests. Patient-reported outcomes help Lupus Warriors and researchers better understand the impact of SLE. For Lupus Warriors, trusting your instincts is the way to go. You know the early warning signs of your flares. You know your...
Lupus Self-Management and Communication Strategies
An essential part of successful self-management (the management of one’s own condition and symptoms) is to communicate with others, not to do it on one’s own. What is self-management? Self-management is the continuous engagement in your illness, by actively participating in the...
Q&A Forum: Self-Management & Accountability
With many Lupus Warriors avoiding in-office doctors visits due to COVID-19 concerns, self-management and accountability is vital. Managing and understanding your symptoms is key in self-management, as well as sharing resources and information with your treatment team. Check out this month's Q&A Forum! Lupus Warriors should be...
Social Media, Chronic Diseases, and Lupus
Social media can be a great tool for learning about lupus and connecting with other Lupus Warriors. But, there can be pitfalls with using the tech. We humans are social animals, and we like to connect with each other. The most popular apps in the world...
Vitamin C, the Immune System, and Lupus
Vitamin C has many vital functions in the body, but how does it effect Lupus Warriors? How much vitamin C should one take? There is an ongoing debate whether or not vitamin c is a prophylaxis against the flu and the common cold. This essential nutrient, though, is vital in...
Steroid Tapering, Health Benefits, & Lupus
The best daily steroid dose for lupus can change. Strategic dosing is an important part of managing lupus. A new study shows that successful steroid tapering of prednisone has increased since 2000. During a lupus flare, you want to feel better. But, the strategies that work to get...
Lupus Type 1 and Type 2: Symptoms and Treatment Distinctions
When considering treatment options for Lupus Warriors, clinicians should focus on key symptoms. These symptom groups, coined Type 1 and Type 2, manifest from different biological activity. Systemic lupus erythematosus, or SLE, is the most common type of lupus. SLE is usually what people mean when...
Immunosuppressive Drugs: Strategies for Staying Healthy
Immunosuppressive drugs reduce the activity of the immune system. They are vital for controlling severe cases of lupus that do not respond to other medications. But, they also leave the body susceptible to infection. The immune system is a little bit like gate security at a...