Day-to-Day Living

Patient-Reported Outcomes, Quality of Life, and Lupus

Day-to-Day Living

Lupus Self-Management and Communication Strategies

An essential part of successful self-management (the management of one’s own condition...

Living with Lupus

Social Media, Chronic Diseases, and Lupus

Social media can be a great tool for learning about lupus and...

Living with Lupus

In Vitro Fertilization (IVF), Fertility, and Lupus

Fertility problems are common. Some women turn to in vitro fertilization to help get pregnant. While effective, it can add additional challenges for Lupus Warriors. In vitro fertilization, or IVF, is a type of fertility treatment that uses hormone treatments. It works like this: Hormone treatments...

Living with Lupus

Caregivers and Lupus Warrior Allies: Helping Advocate

Living with lupus is tough. But, being a caregiver comes with challenges, too. Lupus doesn’t just attack an individual – it hits the whole family network. You, the caregiver or ally (or the Lupus Warrior about to share this article) are not walking an easy path. It can...

Day-to-Day Living

Managing Energy, The Spoon Theory, and Lupus

Lupus Warriors know the challenges of managing energy carefully. Explaining the delicate balance to others can be difficult, but not impossible. The Spoon Theory is a useful strategy A few years ago, Christine Miserandino wrote a post on the blog “But you Don’t Look Sick” called

Living with Lupus

Pregnancy & Lupus: What to Know

#LupusWarriors that are pregnant have a great chance of having healthy, happy, and normal experiences. Understand more about certain risks and advocate for you and your baby’s health. A pregnancy alongside lupus presents additional challenges and risks that should be managed. All lupus pregnancies are considered high-risk—however, less than 50% of...


Sex, Intimacy, and Relationships with Lupus

Is a Sex Life Possible with Lupus? #LupusWarriors shouldn’t be deterred when it comes to sex, intimacy, and lupus. Any individual after a stressful given amount of time could find the idea of sex to be daunting. Individuals with lupus—especially after a flare—might think physical intimacy sounds impossible. In a study...

Day-to-Day Living

Shared Decision Making: Patient Perspectives

When it comes to working with doctors, it can seem hard to be "in the room" -- even when you're actually in the room. Traditionally, the doctor-patient relationship looked something like this: A person would show up in the clinic with a chief concern or a recurring health condition. After some explanation, the...

Living with Lupus

Relationship: When to Tell a New Date You Have Lupus

Lupus is a personal battle. But, a relationship is an opportunity (and a challenge) to include other people in the battle. Depending on how long you have been living with lupus, the current severity of your flares, your personal level of comfort inviting other people into the intimate parts...