Managing Energy, The Spoon Theory, and Lupus
Lupus Warriors know the challenges of managing energy carefully. Explaining the delicate balance to others can be difficult, but not impossible. The Spoon Theory is a useful strategy A few years ago, Christine Miserandino wrote a post on the blog…
Pregnancy & Lupus: What to Know
#LupusWarriors that are pregnant have a great chance of having healthy, happy, and normal experiences. Understand more about certain risks and advocate for you and your baby’s health. A pregnancy alongside lupus presents additional challenges and risks that should be managed. All…
Sex, Intimacy, and Relationships with Lupus
Is a Sex Life Possible with Lupus? #LupusWarriors shouldn’t be deterred when it comes to sex, intimacy, and lupus. Any individual after a stressful given amount of time could find the idea of sex to be daunting. Individuals with lupus—especially…
Shared Decision Making: Patient Perspectives
When it comes to working with doctors, it can seem hard to be "in the room" -- even when you're actually in the room. Traditionally, the doctor-patient relationship looked something like this: A person would show up in the clinic with a…
SYS: When Should You Tell a New Date You Have Lupus?
Lupus is a personal battle. But, a relationship is an opportunity (and a challenge) to include other people in the battle. Depending on how long you have been living with lupus, the current severity of your flares, your personal level…