Relationships
Talking to Your Family About Lupus: Tips & Tricks
Lupus has the potential to affect every area of your life, and many people...
Patient-Reported Outcomes, Quality of Life, and Lupus
Many aspects of lupus can't be recorded with tests. Patient-reported outcomes help...
Lupus Self-Management and Communication Strategies
An essential part of successful self-management (the management of one’s own condition and symptoms) is to communicate with others, not to do it on one’s own. What is self-management? Self-management is the continuous engagement in your illness, by actively participating in the...
Managing Energy, The Spoon Theory, and Lupus
Lupus Warriors know the challenges of managing energy carefully. Explaining the delicate balance to others can be difficult, but not impossible. The Spoon Theory is a useful strategy A few years ago, Christine Miserandino wrote a post on the blog “But you Don’t Look Sick” called
Social Media, Chronic Diseases, and Lupus
Social media can be a great tool for learning about lupus and connecting with other Lupus Warriors. But, there can be pitfalls with using the tech. We humans are social animals, and we like to connect with each other. The most popular apps in the world...
Caregivers and Lupus Warrior Allies: Helping Advocate
Living with lupus is tough. But, being a caregiver comes with challenges, too. Lupus doesn’t just attack an individual – it hits the whole family network. You, the caregiver or ally (or the Lupus Warrior about to share this article) are not walking an easy path. It can...
Pregnancy & Lupus: What to Know
#LupusWarriors that are pregnant have a great chance of having healthy, happy, and normal experiences. Understand more about certain risks and advocate for you and your baby’s health. A pregnancy alongside lupus presents additional challenges and risks that should be managed. All lupus pregnancies are considered high-risk—however, less than 50% of...
Sex, Intimacy, and Relationships with Lupus
Is a Sex Life Possible with Lupus? #LupusWarriors shouldn’t be deterred when it comes to sex, intimacy, and lupus. Any individual after a stressful given amount of time could find the idea of sex to be daunting. Individuals with lupus—especially after a flare—might think physical intimacy sounds impossible. In a study...
Shared Decision Making: Patient Perspectives
When it comes to working with doctors, it can seem hard to be "in the room" -- even when you're actually in the room. Traditionally, the doctor-patient relationship looked something like this: A person would show up in the clinic with a chief concern or a recurring health condition. After some explanation, the...
Relationship: When to Tell a New Date You Have Lupus
Lupus is a personal battle. But, a relationship is an opportunity (and a challenge) to include other people in the battle. Depending on how long you have been living with lupus, the current severity of your flares, your personal level of comfort inviting other people into the intimate parts...