Resources
Hospital Readmission and Severe Lupus Disease Activity
Life with lupus can feel like a revolving door -- between your...
Overcoming Difficulties Maintaining Employment with Lupus
Lupus can get in the way of many aspects of day-to-day life....
Home Medical Devices, Independence, and Lupus
Equipping yourself with the right tools can help you live more independently and happily at home. The right tool makes all the difference. The adage holds for healthcare as well with more equipment being available for use at home than ever before.
New Lab Test Identifies Lupus Flare Risk 12 Weeks in Advance
New blood test, aiSLE™ DX Flare Risk Index, identifies lupus flare risk up to 12 weeks in advance. The lab test is now available for clinical use. Note: Progentec Diagnostics, Inc., the company that developed aiSLE™ DX Flare Risk Index, also powers LupusCornerLife with lupus comes...
Social Media, Chronic Diseases, and Lupus
Social media can be a great tool for learning about lupus and connecting with other Lupus Warriors. But, there can be pitfalls with using the tech. We humans are social animals, and we like to connect with each other. The most popular apps in the world...
Disability Benefits, Supplemental Income, and Lupus
Disability benefits and supplemental security income (SSI) can act as a financial “safety net” for people with severe symptoms of lupus. Lupus brings large bills for medications, treatments, and lab tests. It also makes it harder to work full time. The financial realities of living with lupus can force choices...
Health Insurance for Lupus Warriors | Q&A Forum
Finding the perfect health insurance plan when living with lupus can be difficult. It requires research, analysis of personal health needs, & an understanding of risk tolerances. For this month's Q&A Forum, Lupus Warriors share their personal experiences choosing health insurance. Finding the right insurance to encompass your lupus...
Coronavirus and Lupus | Things to Know
Coronavirus, also known as COVID-19, is a respiratory disease related to the common cold. Although most healthy people do not need to worry about the disease, people with lupus should be careful. This disease has been in the news lately, and COVID-19 (short for Coronavirus disease 2019) may well be...
Cenerimod: A Potential New Lupus Medication
Research is underway to measure the effectiveness of Cenerimod, a new lupus medication. Early evidence suggests it can help reduce symptoms and prevent flares. Cenerimod is a new medication being developed by the company Idorsia. It is an agonist and modulator for the
Patient-Reported Outcomes (PRO), LupusPRO, and Lupus
Measuring lupus pain, fatigue, and other symptoms over time is hard. Patient-reported outcomes (PROs) are self-reports from patients that can help diagnose and manage the disease. Patient-reported outcomes use surveys to measure lupus. Mostly, these surveys identify the physical symptoms of lupus. But also helps researchers and doctors identify the...
NIH Funding and Lupus
The National Institute of Health, or NIH, is a part of the federal government that is responsible for funding, facilitating, and conducting research that improves the health of the nation and the world. Autoimmune diseases, including lupus, are a major health problem for the American people. Because of...