Day-to-Day Living
Hygiene Practices, Cleanliness, and Lupus
Good hygiene, the practice of keeping yourself and your living space clean, is an...
Pets, Health Benefits of Animals, & Lupus
“Sometimes it feels like my pet is the only one that understands me,” is...
The Four Subgroups of Systemic Lupus
Although all Lupus Warriors stand together under the same banner, understanding the differences between the subtypes of SLE can help us understand and better treat lupus. Lupus is an inflammatory disease that effects organs throughout the body through immune system cells called...
Cold Weather, Symptom Flares, and Lupus
Cold weather can bring lupus flares with it, but the reasons behind these flares are not fully understood. How can you prepare yourself for the cold months? Most people with lupus are, unfortunately, very familiar with symptom flares. The triggers that cause...
Tattoos and Lupus: Is There a Risk?
Tattoos are a part of many cultures and en vogue these days. But, what are the potential risks for Lupus Warriors? Tattoos are a permanent image on the skin formed by injecting and embedding tiny particles of pigment into it. These particles are suspended in...
Societal Expectations and Lupus
People with lupus often find it hard to live up to many social norms and expectations, which often emphasize ‘sucking it up.’ Societal expectations are the rules that we make in order to safely navigate the complex social world of our lives and our...
Managing Energy, The Spoon Theory, and Lupus
Lupus Warriors know the challenges of managing energy carefully. Explaining the delicate balance to others can be difficult, but not impossible. The Spoon Theory is a useful strategy A few years ago, Christine Miserandino wrote a post on the blog “But you Don’t Look Sick” called
Air Quality and Lupus: Take a Deep Breath
Many Lupus Warriors are aware of the link between lupus and lung health, but the air we breathe can also affect lupus. The air we breathe is linked to many different health issues, and it goes far beyond lung infections and asthma. According to the World Health Organization...
10 Challenges for Managing Lupus
Living with lupus means learning to overcome a wide range of challenges. How many of these ten are you familiar with? The most common type of lupus is systemic lupus erythematosus (SLE). But, there is plenty of variability in how the autoimmune disease presents....
What You Need to Know About Neuropsychiatric Lupus
From fatigue to depression to psychosis, neuropsychiatric symptoms are both a common and major issue for people with lupus and one we know very little about. Nearly 50% of people with lupus experience some sort of brain or nervous system-related symptom related to their lupus. Despite...
Lupus Recordkeeping: Tips, Tricks, and More
Keeping records is vital for people with lupus and it can identify triggers. Here are some tips, tricks, and pitfalls you will encounter along the way! Keeping track of what is and isn't working is a crucial part of treating lupus. But, simply remembering symptoms isn't...