Day-to-Day Living
Managing Energy, The Spoon Theory, and Lupus
Lupus Warriors know the challenges of managing energy carefully. Explaining the delicate balance to...
Age, Getting Older, and Lupus
The relationship between aging and lupus is a complicated one and can be difficult...
Fun, Friends, and Activities for Lupus Warriors
It can be difficult to spend time with friends while having lupus, but the key is to be flexible and understanding, and find other, less-taxing ways to spend time with your friends. Systemic lupus erythematosus is an autoimmune disease that affects organs throughout the body, including the joints,...
Lupus Self-Management and Communication Strategies
An essential part of successful self-management (the management of one’s own condition and symptoms) is to communicate with others, not to do it on one’s own. What is self-management? Self-management is the continuous engagement in your illness, by actively participating in the...
Sleep Tips and Lupus
Tips and tricks for sleeping with lupus. Systemic Lupus Erythematosus (SLE) is an autoimmune disorder, which means that it is heavily effected by stress and the general health of the body, including how well you are sleeping. Sleep is important to a...
Lupus Headaches: Causes, Types, and Treatments
Lupus headaches are a notorious and well-known symptom of lupus. However, they can also be difficult to describe for Lupus Warriors. Headaches are a common symptom of systemic lupus erythematosus (SLE). Previous studies have varied on their expected prevalence, but up to 78% of...
Tips & Tricks for Cleaning with Lupus
Cleanliness is good for physical and mental health, but pain and fatigue are obstacles to clean spaces for people with lupus. There are ways to make it easier, though. Lupus can make it difficult to manage everyday tasks (and age does not make...
What Not to Say to Someone With Lupus
Lupus warriors know all too well that words can hurt just as much as sticks and stones. A little empathy and sympathy go a long way. People say the darndest things, and even the most well-intentioned people can say things that can deeply wound people with...
Societal Expectations and Lupus
People with lupus often find it hard to live up to many social norms and expectations, which often emphasize ‘sucking it up.’ Societal expectations are the rules that we make in order to safely navigate the complex social world of our lives and our...
What You Need to Know About Neuropsychiatric Lupus
From fatigue to depression to psychosis, neuropsychiatric symptoms are both a common and major issue for people with lupus and one we know very little about. Nearly 50% of people with lupus experience some sort of brain or nervous system-related symptom related to their lupus. Despite...
Cold Weather, Symptom Flares, and Lupus
Cold weather can bring lupus flares with it, but the reasons behind these flares are not fully understood. How can you prepare yourself for the cold months? Most people with lupus are, unfortunately, very familiar with symptom flares. The triggers that cause...