Lupus Fatigue & the Seasons: FSS Data
There have been over 942 responses to the Fatigue Severity Scale. Let's analyze the scores to look for seasonal lupus fatigue. In previous posts, we have looked at why we use the FSS to measure lupus fatigue and some initial results…
Hair Loss (Alopecia) – A Symptom of Lupus?
Hair loss, or alopecia, is a symptom of lupus that impacts roughly 50% of people with the disease. Lupus causes inflammation and when it impacts the body's largest organ, the skin, it can result in hair loss. It is most common to…
Allergies in Spring and Lupus Symptoms
Spring is here! But it brings more than warm weather. Flowers. Pollen. Insects. It's time to battle lupus AND allergies. An allergy is a reaction by your immune system to a stimulus that does not bother other people. An allergen…
Lupus Flares: Is There Such a Thing as Normal?
It's normal to fear the unexpected - and what's more unexpected than lupus flares? You follow the standard advice on how to avoid lupus flares by trying to limit stress, getting plenty of rest, and being cautious of UV light.…
Stress, Lupus, and Music 🎧
The research is in. Stress and lupus do NOT mix. Can listening to your favorite jam help? We all know that stress can makes things worse. A prospective study published in 1994 by Da Costa, D., et. al, found that major life stressors…
SYS: Writing About Lupus with Emojis
They say a picture is worth a thousand words -- Well, how many emojis does it take to describe lupus? It can be hard to explain lupus to friends and family. But, research is beginning to look at the value…
A Mental Health Professional Answers the Top 4 Questions
You're a lupus pro. You know when to call your rheumatologist, dermatologist, or your PCP. But when do you call for mental health support? Making the decision to reach out to a mental health professional, and following through with contacting…
Lupus Can Make It Hard To Sleep. Can Tech Help?
While everyone needs good sleep, for Lupus Warriors it is even more critical, but often elusive. "My mom thinks I'm lazy but I told her most nights I don't even sleep ... I just lay there." Few people understand the feeling…
Managing a Lupus Flare – Advice From Experts
Because they are unpredictable, a lupus flare can be frustrating and frightening. The onset of symptoms, ranging from rashes and fatigue to serious joint pain and risk of organ damage, can seem unmanageable. A lupus flare contrast periods of time with…
Lupus Fatigue and the FSS Scale Scores
Tracking your lupus fatigue helps identify factors that may help or exacerbate your symptoms. Are you tracking? In the last two weeks, over 350 people have used Facebook Messenger (to start tracking, just type: FSS) to track their fatigue using the…