Cutaneous Lupus Erythematosus is a chronic autoimmune disease and one form of lupus.
This form of lupus is limited to the skin. Approximately two-thirds of people with lupus will develop some form of CLE. Skin disease in lupus can cause rashes or sores (lesions). These symptoms typically appear on on sun-exposed areas such as the:
- face
- ears
- neck
- arms
- legs
- hands
Approximately two-thirds of people with lupus will develop some form of CLE
Subtypes of CLE
- Chronic Cutaneous Lupus (CCLE)
- Subacute Cutaneous Lupus (SCLE)
- Acute Cutaneous Lupus (ACLE)
Chronic Cutaneous Lupus (CCLE)/Discoid Lupus (DLE)
The most common form of CCLE is discoid lupus (DLE), which appears as disk-shaped, round lesions that are raised, scaly, and red. Usually they do not itch or hurt. The sores usually appear on the scalp and face but sometimes they will occur on other parts of the body as well. These lesions can produce scarring and skin discoloration (darker and/or lighter colored areas). Discoid lesions that occur on the scalp may cause hair to fall out. If the lesions form scars when they heal, hair loss may be permanent.
Discoid lupus lesions can be very sensitive to light (photosensitive), so it’s important to avoid being outside during peak sunlight hours and make sure you wear sunscreen and protective clothing if you are out in the sun.
Discoid Lupus normally occurs without systemic lupus (SLE). However, some people with SLE do get discoid lesions. About 5% of those with localized DLE (above the neck) and 20% of those with generalized DLE (above and below the neck) can get systemic symptoms.
Lupus Warriors with DLE should be evaluated regularly to make sure that SLE is not developing.
Subacute Cutaneous Lupus (SCLE)
Subacute Cutaneous Lupus lesions may appear as areas of red scaly skin with distinct edges or as red, ring-shaped lesions, most commonly on sun-exposed areas of the arms, shoulders, neck, and body. They usually do not itch or scar, but they can leave the skin discolored. Lesions are also sensitive to light, so preventive measures should be taken when spending time outdoors or under fluorescent lights. SCLE is not often associated with SLE, but it is always important to keep your doctor informed of new symptoms or changes.
Acute Cutaneous Lupus (ACLE)
Acute Cutaneous Lupus lesions occur when SLE is active. The most typical form of acute cutaneous lupus is flat red patches on the face that resemble a sunburn. When the rash appears on both cheeks and across the bridge of the nose in the shape of a butterfly, it is known as the “butterfly rash.” The rash can also appear on arms, legs, and body. Up to 65% of Lupus Warriors experience the butterfly rash.
These lesions tend to be very sensitive to light. The lesions are non-scarring but change in skin color can occur.
Thank you for addressing this form of Lupus. I was diagnosed a year ago with cutaneous lupus when I developed a bright red horseshoe shaped rash on my chest. A biopsy confirmed the diagnosis. I am currently on hydroxchloroquin and tolerating it very well. I break out in strange rashes on a constant basis on my arms and legs. But seem to not last very long. Thanks for addressing this type of Lupus.
Hello. I found this article very interesting. I was first diagnosed with Chronic Discord Lupus @ 14. My scarring is permanent and on my face (90%of it…), which are on my cheeks, behind my ears, on my arms. I developed Systemic Lupus life, at the age of 36ish( I ignored the symptoms for years before I sought medical attention), I was in denial of my Disease progression). At any rate, back then, the treatment was cordran (msp) tape, and Protaba (24 capsules daily) and applying a skin bleaching solution to the leisons( once the tape pulled the scabs off). My scars are hypo-pigmentation and 36 years later I Still adorn my Warrior Stripes. LOL.
Today, focus is on SLE.. in which I take 400 MG Hydroxychloriquine daily and pain medicines, along with vitamins, etc.
I would like to know what’s the best body wash to use ? as most soaps make the lesions worse. I also swim in the pool
Head & shoulders shampoo used as body wash has worked the best for me.
I had a rash on my left hand and foot. it’s an underlying autoimmune condition. I used selson blue medicated shampoo and the rash on my arm and hand cleared up. the one on my foot has proved to be harder to clear up. I wash my feet twice a day and use various prescription ointments. it also itches but it’s very slowly clearing up.
Head & shoulders shampoo used as body wash has worked the best for me.
I only joined the club but already appreciate the insight.