Recognizing flare triggers makes it possible to predict changes in lupus disease activity before the symptoms begin.
Living with lupus can feel like a roller coaster. Over night, symptoms can show up or disappear and inflammation can rise and fall. Internal factors, like stress, and external factors, like air pollution, both contribute to disease fluctuations.
This week, in the LupusCorner Q&A Forum, Lupus Warriors share the environmental and physical triggers for lupus flares. And, the first symptoms that they experience with a flare begins.
I liked this forum. I will pay more attention to the communications from now on so I can participate in further Q&A session. I agreed with most people who said that the Sun is a major trigger for a Lupus flare. My biggest trigger can’t be controlled. Pre-rain weather and dampness is my biggest trigger and it causes pain throughout my body, with stiffness and brain fog.
When my flare about to begin I get Itchy skin, micro-bleeds on my scalp, and frequent urination/
This is the only place I’m seeing GI symptoms like mine. I have not yet confirmed Lupus but I have the rash only near the opposite mucous membrane. I pass mucous cramp and bloat and also have prostate symptoms. Other Lupus type symptoms are fatigue, pain and inflammation in various joints. I have had bone fractures recently. I have signs of narcolepsy, blurred vision, cloudy thinking, reynaud’s phenomena . The rash started about 20 years ago that I thought was jock itch then settled in psoriasis. I have degeneration in my cervical vertebrae, wrists and knees. Could this GI stuff be Lupus also?
I get terrible GI issues too, before I was diagnosed with lupus the dr’s thought I had gluten intolerance, lactose intolerance, possible Crohn’s disease & I’ve even had my gallbladder removed so to severe pain in my upper stomach area. But even with all the diets and the surgery I still have the same GI issues. Nausea, vomiting and bloating have also become a regular part of my day all day.
My triggers are cold weather or water in the pool, stress, under 7 hours of sleep and viruses. My symptoms are fatigue, brain fog, joint and muscle aches, pleurisy and pericarditis, oily diarrhea and mouth ulcers.
This was very informative. I’m recently diagnosed & an trying to find out as much as I can.
I know I’m going to flair when I start feeling extremely tired and having flu like symptoms. However, I can’t figure out triggers, I know stress but the sun doesn’t seem to bother me or else not right away. But, the rash on my hands gets much redder and the pain and swelling in my wrist and fingers becomes much worse as does all my joint pain.
I have joint pain, can’t sleep, tired all the time, can’t exercise, weight gain and many others.
Interesting comments about mouth ulcers. Ive been getting sores in my mouth on my upper palate which last about 5-7 days. I never thought about my joint pain which coincided.. are mouth sores common with flares? I have sjrogens and RA as well
Kmbrlycllhn@yahoo
Thank you!
🙂 You’re welcome – thanks for reading!
I’ve been recently diagnosed too. The sun is the biggie!
I’m newly diagnosed and at the “trying to figure out a lot of this” stage. I do recognize the sun, heat, and stress as being a huge factors for a flare! I have extreme fatigue, and all over body swelling . Any suggestions on how to get rid of the symptoms after they begin would be great!
I ‘ve had lupus as long as can remember, 3sisters also have it. I don’t know what I should take. Also have post polio, sjrogrens syndrome, fibro , 3spine surgeries. Degenerative dsc disease. Help!
I will be seeing my third doctor next week I have mottling of my whole back for two months. I just wondered if anyone had skin issues?
I have chronic chills and extreme fatigue prior to a flare. Fatigue is so bad it takes me 2 hours to prepare for bed
Triggers are stress and lack of sleep. Nose sores, tooth pain, burning mouth, joint pain, alopechia, headaches and fatigue
Well! This is a club none of us wanted to join! Waiting for my doctor appointment for official diagnosis but no surprise here! And I’m 74! Fibro diagnosed in 1990 but symptoms from age 5. Generational family issues of Sjogren’s, seizures, Ehlers Danlos Syndrome, Raynauds and polydactyly. Among others yet to be identified. At some point I expect many of these will have some kind of connection.