Day-to-Day Living

Managing Energy, The Spoon Theory, and Lupus

Lupus Warriors know the challenges of managing energy carefully. Explaining the delicate balance to others can be difficult, but not impossible. The Spoon Theory is a useful strategy A few years ago, Christine Miserandino wrote a post on the blog “But you Don’t Look Sick” called

Diagnosis and Tests

Fatigue Severity Scale (FSS) and Lupus

Fatigue is a common lupus symptom. But, comparing fatigue over time, or between people, is difficult. With around 80% of people with lupus experiencing fatigue, it is crucial to have a validated measure that can distinguish between different symptoms. The Fatigue Severity Scale (FSS) was distinguishes fatigue from clinical depression....

Day-to-Day Living

Fatigue, Decreased Energy, & Lupus

For many people with lupus, extreme fatigue is one of the primary symptoms of the disease. Know what contributes to this symptom and learn strategies for minimizing the onset as early as possible. What contributes to fatigue with lupus? To start, how common is lupus fatigue? Upwards...

Day-to-Day Living

Lupus Fatigue & the Seasons: FSS Data

There have been over 942 responses to the Fatigue Severity Scale. Let's analyze the scores to look for seasonal lupus fatigue. In previous posts, we have looked at why we use the FSS to measure lupus fatigue and some initial results from the tool. Now that there are a...

Day-to-Day Living

Lupus Fatigue and the FSS Scale Scores

Tracking your lupus fatigue helps identify factors that may help or exacerbate your symptoms. Are you tracking? In the last two weeks, over 350 people have used Facebook Messenger (to start tracking, just type: FSS) to track their fatigue using the Fatigue Severity Scale (FSS). Below, we will look...