Lupus concerns study overview
All patients in the lupus concerns study had systemic lupus erythematosus (SLE). 84 patients and 21 physicians participated in the trial. Both groups completed a survey about lupus symptoms and quality of life. The survey was made of up questions ranked on a 5-point, Likert scale.
Two major lupus concerns emerged for patients:
- function (living with lupus)
However, the main health concern for physicians regarding their patients was organ complications.
The top 10 physician lupus concerns were “ranked significantly lower by patients.” Physicians rated seven of the patient top 10 significantly differently.
In addition to the scale information, the physicians also reported how often they routinely assessed the top patient concerns. The top 3 lupus concerns as ranked by patients were:
- Fatigue (routinely assessed by 47.6% of physicians)
- Pain (routinely assessed by 42.9% of physicians)
- Feeling worn out (routinely assessed by 9.5% of physicians)
The researchers concluded that there was a serious discordance between patients and physicians regarding health concerns and communication.