Anonymous Lupus Warrior
Often the intention can be good, but many people don’t understand how hurtful certain comments can be. What is something you’ve been told that has made you uncomfortable or hurt?
If you would just get up, and get out. You would feel better.
The topic of medication can be a sore subject for many Lupus Warriors, too. Research also shows that many people that battle a chronic illness must also battle a mental health condition (such as depression or anxiety). Has the topic of medication ever been an issue for you with friends or family?
If yes, what have people said to you about your use of medication for lupus?
That’s a lot of medicine. Maybe, that’s why you feel so bad.
“It could be worse.” Reminding people with lupus that things ‘could be worse’ can sting, and can be quite dismissive of the struggles Lupus Warriors face. Have you ever been in a social situation that made you feel dismissed?
Yes. When I had my hip replaced. And I was hurting. The nurse said, “Be thankful, you could have no legs”.
One thought on “Q&A Forum: What NOT To Say To Lupus Warriors”
They don’t understand……you look fine I can’t believe the pain is that bad. Your making a mountain out of a mile hill